Please use this identifier to cite or link to this item: https://ahro.austin.org.au/austinjspui/handle/1/32641
Title: Understanding the telehealth experience of care by people with ILD during the COVID-19 pandemic: what have we learnt?
Austin Authors: Tikellis, Gabriella;Corte, Tamera;Glaspole, Ian N;Goh, Nicole S L ;Khor, Yet H ;Wrobel, Jeremy;Symons, Karen;Fuhrmeister, Lisa;Glenn, Laura;Chirayath, Shiji;Troy, Lauren;Holland, Anne E 
Affiliation: Respiratory ResearchAlfred, Central Clinical School, Monash University, Melbourne, VIC, Australia.;NHMRC Centre of Research Excellence in Pulmonary Fibrosis, Sydney, Australia.;Department of Allergy, Clinical Immunology and Respiratory Medicine, Monash University, Melbourne, Australia.
NHMRC Centre of Research Excellence in Pulmonary Fibrosis, Sydney, Australia.;Royal Prince Alfred Hospital, Sydney, Australia.;Central Clinical School, The University of Sydney, Sydney, NSW, Australia.
Respiratory ResearchAlfred, Central Clinical School, Monash University, Melbourne, VIC, Australia.;NHMRC Centre of Research Excellence in Pulmonary Fibrosis, Sydney, Australia.;Department of Respiratory Medicine, Alfred Health, Melbourne, VIC, Australia.
Department of Respiratory Medicine, Alfred Health, Melbourne, VIC, Australia; Faculty of Medicine, University of Melbourne, Melbourne, VIC, Australia.
Respiratory ResearchAlfred, Central Clinical School, Monash University, Melbourne, VIC, Australia.;Department of Respiratory Medicine, Alfred Health, Melbourne, VIC, Australia.;Department of Respiratory and Sleep Medicine, Austin Health, Melbourne, VIC, Australia.;Institute for Breathing and Sleep, Melbourne, Australia.
Fiona Stanley Hospital, Perth, WA, Australia.;School of Medicine, University of Notre Dame, Fremantle, WA, Australia.
Department of Respiratory Medicine, Alfred Health, Melbourne, VIC, Australia.
Department of Respiratory and Sleep Medicine, Austin Health, Melbourne, VIC, Australia.;Institute for Breathing and Sleep, Melbourne, Australia.
Royal Prince Alfred Hospital, Sydney, Australia.;Central Clinical School, The University of Sydney, Sydney, NSW, Australia.
Fiona Stanley Hospital, Perth, WA, Australia.
Royal Prince Alfred Hospital, Sydney, Australia.;Central Clinical School, The University of Sydney, Sydney, NSW, Australia.
Respiratory ResearchAlfred, Central Clinical School, Monash University, Melbourne, VIC, Australia.;NHMRC Centre of Research Excellence in Pulmonary Fibrosis, Sydney, Australia.;Institute for Breathing and Sleep, Melbourne, Australia.;Department of Physiotherapy, Alfred Health, Melbourne, Australia.
Institute for Breathing and Sleep
Respiratory and Sleep Medicine
Issue Date: 6-Apr-2023
Date: 2023
Publication information: BMC Pulmonary Medicine 2023; 23(1): 113
Abstract: The COVID-19 pandemic resulted in a rapid transformation of health services. This study aimed to understand the experiences of healthcare by people with interstitial lung disease (ILD), to inform future service delivery. Four specialist clinics in tertiary centres in Australia (Victoria:2 sites; New South Wales: 1 site; Western Australia: 1 site) recruited patients with ILD during an 8-week period from March 2021. Participants completed a COVID-specific questionnaire focused on health-related experiences during 2020. Ninety nine (65% of 153) participants completed the questionnaire. 47% had idiopathic pulmonary fibrosis or connective tissue disease-associated ILD, 62% were female and the average age was 66¬†years. Whilst 56% rated their overall health in 2020 as the same as months prior, 38% indicated a worsening in health attributed to reduced physical activity and fear of contracting the virus. Access to healthcare professionals was 'good' in 61%, and 'fair-to-poor' for 37% due to missed respiratory assessments, with telehealth (mainly telephone) being perceived as less effective. 89% had contact with respiratory physicians, 68% with general practitioners, predominantly via telephone, with few video consultations. High satisfaction with care was reported by 78%, with lower satisfaction attributed to delays in assessments, disruption to usual services such as pulmonary rehabilitation, and dissatisfaction with telehealth. People with ILD were generally satisfied with their care during 2020, however reduced access to healthcare professionals was challenging for those experiencing a deterioration in health. Telehealth was largely well received but did not always meet the needs of people with ILD particularly when unwell.
URI: https://ahro.austin.org.au/austinjspui/handle/1/32641
DOI: 10.1186/s12890-023-02396-6
ORCID: 
Journal: BMC Pulmonary Medicine
Start page: 113
PubMed URL: 37024848
ISSN: 1471-2466
Type: Journal Article
Subjects: COVID-19 pandemic
Healthcare experiences
Interstitial lung disease
Pulmonary fibrosis
Lung Diseases, Interstitial/therapy
Idiopathic Pulmonary Fibrosis/therapy
Telemedicine/methods
Appears in Collections:Journal articles

Show full item record

Page view(s)

32
checked on Dec 3, 2023

Google ScholarTM

Check


Items in AHRO are protected by copyright, with all rights reserved, unless otherwise indicated.