Please use this identifier to cite or link to this item: https://ahro.austin.org.au/austinjspui/handle/1/32641
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dc.contributor.authorTikellis, Gabriella-
dc.contributor.authorCorte, Tamera-
dc.contributor.authorGlaspole, Ian N-
dc.contributor.authorGoh, Nicole S L-
dc.contributor.authorKhor, Yet H-
dc.contributor.authorWrobel, Jeremy-
dc.contributor.authorSymons, Karen-
dc.contributor.authorFuhrmeister, Lisa-
dc.contributor.authorGlenn, Laura-
dc.contributor.authorChirayath, Shiji-
dc.contributor.authorTroy, Lauren-
dc.contributor.authorHolland, Anne E-
dc.date2023-
dc.date.accessioned2023-04-14T02:47:27Z-
dc.date.available2023-04-14T02:47:27Z-
dc.date.issued2023-04-06-
dc.identifier.citationBMC Pulmonary Medicine 2023; 23(1): 113en_US
dc.identifier.issn1471-2466-
dc.identifier.urihttps://ahro.austin.org.au/austinjspui/handle/1/32641-
dc.description.abstractThe COVID-19 pandemic resulted in a rapid transformation of health services. This study aimed to understand the experiences of healthcare by people with interstitial lung disease (ILD), to inform future service delivery. Four specialist clinics in tertiary centres in Australia (Victoria:2 sites; New South Wales: 1 site; Western Australia: 1 site) recruited patients with ILD during an 8-week period from March 2021. Participants completed a COVID-specific questionnaire focused on health-related experiences during 2020. Ninety nine (65% of 153) participants completed the questionnaire. 47% had idiopathic pulmonary fibrosis or connective tissue disease-associated ILD, 62% were female and the average age was 66 years. Whilst 56% rated their overall health in 2020 as the same as months prior, 38% indicated a worsening in health attributed to reduced physical activity and fear of contracting the virus. Access to healthcare professionals was 'good' in 61%, and 'fair-to-poor' for 37% due to missed respiratory assessments, with telehealth (mainly telephone) being perceived as less effective. 89% had contact with respiratory physicians, 68% with general practitioners, predominantly via telephone, with few video consultations. High satisfaction with care was reported by 78%, with lower satisfaction attributed to delays in assessments, disruption to usual services such as pulmonary rehabilitation, and dissatisfaction with telehealth. People with ILD were generally satisfied with their care during 2020, however reduced access to healthcare professionals was challenging for those experiencing a deterioration in health. Telehealth was largely well received but did not always meet the needs of people with ILD particularly when unwell.en_US
dc.language.isoeng-
dc.subjectCOVID-19 pandemicen_US
dc.subjectHealthcare experiencesen_US
dc.subjectInterstitial lung diseaseen_US
dc.subjectPulmonary fibrosisen_US
dc.titleUnderstanding the telehealth experience of care by people with ILD during the COVID-19 pandemic: what have we learnt?en_US
dc.typeJournal Articleen_US
dc.identifier.journaltitleBMC Pulmonary Medicineen_US
dc.identifier.affiliationRespiratory ResearchAlfred, Central Clinical School, Monash University, Melbourne, VIC, Australia.;NHMRC Centre of Research Excellence in Pulmonary Fibrosis, Sydney, Australia.;Department of Allergy, Clinical Immunology and Respiratory Medicine, Monash University, Melbourne, Australia.en_US
dc.identifier.affiliationNHMRC Centre of Research Excellence in Pulmonary Fibrosis, Sydney, Australia.;Royal Prince Alfred Hospital, Sydney, Australia.;Central Clinical School, The University of Sydney, Sydney, NSW, Australia.en_US
dc.identifier.affiliationRespiratory ResearchAlfred, Central Clinical School, Monash University, Melbourne, VIC, Australia.;NHMRC Centre of Research Excellence in Pulmonary Fibrosis, Sydney, Australia.;Department of Respiratory Medicine, Alfred Health, Melbourne, VIC, Australia.en_US
dc.identifier.affiliationDepartment of Respiratory Medicine, Alfred Health, Melbourne, VIC, Australia; Faculty of Medicine, University of Melbourne, Melbourne, VIC, Australia.en_US
dc.identifier.affiliationRespiratory ResearchAlfred, Central Clinical School, Monash University, Melbourne, VIC, Australia.;Department of Respiratory Medicine, Alfred Health, Melbourne, VIC, Australia.;Department of Respiratory and Sleep Medicine, Austin Health, Melbourne, VIC, Australia.;Institute for Breathing and Sleep, Melbourne, Australia.en_US
dc.identifier.affiliationFiona Stanley Hospital, Perth, WA, Australia.;School of Medicine, University of Notre Dame, Fremantle, WA, Australia.en_US
dc.identifier.affiliationDepartment of Respiratory Medicine, Alfred Health, Melbourne, VIC, Australia.en_US
dc.identifier.affiliationDepartment of Respiratory and Sleep Medicine, Austin Health, Melbourne, VIC, Australia.;Institute for Breathing and Sleep, Melbourne, Australia.en_US
dc.identifier.affiliationRoyal Prince Alfred Hospital, Sydney, Australia.;Central Clinical School, The University of Sydney, Sydney, NSW, Australia.en_US
dc.identifier.affiliationFiona Stanley Hospital, Perth, WA, Australia.en_US
dc.identifier.affiliationRoyal Prince Alfred Hospital, Sydney, Australia.;Central Clinical School, The University of Sydney, Sydney, NSW, Australia.en_US
dc.identifier.affiliationRespiratory ResearchAlfred, Central Clinical School, Monash University, Melbourne, VIC, Australia.;NHMRC Centre of Research Excellence in Pulmonary Fibrosis, Sydney, Australia.;Institute for Breathing and Sleep, Melbourne, Australia.;Department of Physiotherapy, Alfred Health, Melbourne, Australia.en_US
dc.identifier.affiliationInstitute for Breathing and Sleepen_US
dc.identifier.affiliationRespiratory and Sleep Medicineen_US
dc.identifier.doi10.1186/s12890-023-02396-6en_US
dc.type.contentTexten_US
dc.identifier.pubmedid37024848-
dc.description.volume23-
dc.description.issue1-
dc.description.startpage113-
dc.subject.meshtermssecondaryLung Diseases, Interstitial/therapy-
dc.subject.meshtermssecondaryIdiopathic Pulmonary Fibrosis/therapy-
dc.subject.meshtermssecondaryTelemedicine/methods-
local.name.researcherGoh, Nicole S L
item.fulltextNo Fulltext-
item.cerifentitytypePublications-
item.openairetypeJournal Article-
item.openairecristypehttp://purl.org/coar/resource_type/c_18cf-
item.grantfulltextnone-
item.languageiso639-1en-
crisitem.author.deptRespiratory and Sleep Medicine-
crisitem.author.deptInstitute for Breathing and Sleep-
crisitem.author.deptRespiratory and Sleep Medicine-
crisitem.author.deptInstitute for Breathing and Sleep-
crisitem.author.deptMedicine (University of Melbourne)-
crisitem.author.deptInstitute for Breathing and Sleep-
crisitem.author.deptPhysiotherapy-
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