Please use this identifier to cite or link to this item: https://ahro.austin.org.au/austinjspui/handle/1/30789
Title: Development of an Australia and New Zealand Lung Cancer Clinical Quality Registry: a protocol paper.
Austin Authors: Smith, Shantelle;Brand, Margaret;Harden, Susan;Briggs, Lisa;Leigh, Lillian;Brims, Fraser;Brooke, Mark;Brunelli, Vanessa N;Chia, Collin;Dawkins, Paul;Lawrenson, Ross;Duffy, Mary;Evans, Sue;Leong, Tracy L ;Marshall, Henry;Patel, Dainik;Pavlakis, Nick;Philip, Jennifer;Rankin, Nicole;Singhal, Nimit;Stone, Emily;Tay, Rebecca;Vinod, Shalini;Windsor, Morgan;Wright, Gavin M;Leong, David;Zalcberg, John;Stirling, Rob G
Affiliation: Department of Radiation Oncology, Peter MacCallum Cancer Centre, Melbourne, Victoria, Australia
Department of Medical Oncology, The Royal Hobart Hospital, Hobart, Tasmania, Australia
Cancer Therapy Centre, Liverpool Hospital, Liverpool, New South Wales, Australia
Department of Thoracic Surgery, Prince Charles and Royal Brisbane Hospital, Brisbane, Queensland, Australia
Department of Surgery, Cardiothoracic Surgery Unit, St Vincent, Victoria, Australia
Department of Medical Oncology, John James Medical Centre Deakin, Canberra, Australian Capital Territory, Australia
Cancer Research Program, Monash University, Melbourne, Victoria, Australia
Department of Medicine, Monash University, Clayton, Victoria, Australia. Respiratory Medicine, Alfred Hospital, Melbourne, Victoria, Australia
Department of Epidemiology and Preventive Medicine, Monash University, Clayton, Victoria, Australia
Victorian Lung Cancer Registry, Monash University, Clayton, Victoria, Australia
Department of Respiratory Medicine, Sir Charles Gairdner Hospital, Perth, Western Australia, Australia
Lung Foundation Australia, Milton, Queensland, Australia
Faculty of Health, School of Nursing, Queensland University of Technology, Brisbane, Queensland, Australia
Department of Respiratory Medicine, Launceston General Hospital, Launceston, Tasmania, Australia
Lung Cancer Service, Peter MacCallum Cancer Centre, Melbourne, Victoria, Australia
Victorian Cancer Registry, Cancer Council Victoria, Melbourne, Victoria, Australia
Respiratory and Sleep Medicine
Department of Thoracic Medicine, The Prince Charles Hospital, Chermside, Queensland, Australia
Department of Medical Oncology, Lyell McEwin Hospital, Elizabeth Vale, South Australia, Australia
Medical Oncology, Genesis Care and University of Sydney, Sydney, New South Wales, Australia
Department of Medicine, Univ Melbourne, Fitzroy, Victoria, Australia
Faculty of Medicine and Health, University of Sydney, Sydney, New South Wales, Australia
Department of Medicine, University of Adelaide, Adelaide, South Australia, Australia
School of Clinical Medicine, University NSW, Sydney, Victoria, Australia
Department of Respiratory Medicine, Middlemore Hospital, Auckland, New Zealand..
Waikato Medical Research Centre, University of Waikato, Hamilton, Waikato, New Zealand.. Strategy and Funding, Waikato District Health Board, Hamilton, New Zealand..
Issue Date: 29-Aug-2022
metadata.dc.date: 2022
Publication information: BMJ Open 2022; 12(8): e060907
Abstract: Lung cancer is the leading cause of cancer mortality, comprising the largest national cancer disease burden in Australia and New Zealand. Regional reports identify substantial evidence-practice gaps, unwarranted variation from best practice, and variation in processes and outcomes of care between treating centres. The Australia and New Zealand Lung Cancer Registry (ANZLCR) will be developed as a Clinical Quality Registry to monitor the safety, quality and effectiveness of lung cancer care in Australia and New Zealand. Patient participants will include all adults >18 years of age with a new diagnosis of non-small-cell lung cancer (NSCLC), SCLC, thymoma or mesothelioma. The ANZLCR will register confirmed diagnoses using opt-out consent. Data will address key patient, disease, management processes and outcomes reported as clinical quality indicators. Electronic data collection facilitated by local data collectors and local, state and federal data linkage will enhance completeness and accuracy. Data will be stored and maintained in a secure web-based data platform overseen by registry management. Central governance with binational representation from consumers, patients and carers, governance, administration, health department, health policy bodies, university research and healthcare workers will provide project oversight. The ANZLCR has received national ethics approval under the National Mutual Acceptance scheme. Data will be routinely reported to participating sites describing performance against measures of agreed best practice and nationally to stakeholders including federal, state and territory departments of health. Local, regional and (bi)national benchmarks, augmented with online dashboard indicator reporting will enable local targeting of quality improvement efforts.
URI: https://ahro.austin.org.au/austinjspui/handle/1/30789
DOI: 10.1136/bmjopen-2022-060907
ORCID: 0000-0002-0715-1405
0000-0001-8075-6219
0000-0001-9877-5450
0000-0002-1950-1505
Journal: BMJ Open
PubMed URL: 36038161
Type: Journal Article
Subjects: PREVENTIVE MEDICINE
PUBLIC HEALTH
Quality in health care
RESPIRATORY MEDICINE (see Thoracic Medicine)
Respiratory tract tumours
Appears in Collections:Journal articles

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