Development of an Australia and New Zealand Lung Cancer Clinical Quality Registry: a protocol paper.

2022-08-29

Smith, Shantelle

Brand, Margaret

Harden, Susan

Briggs, Lisa

Leigh, Lillian

Brims, Fraser

Brooke, Mark

Brunelli, Vanessa N

Chia, Collin

Dawkins, Paul

Lawrenson, Ross

Duffy, Mary

Evans, Sue

Leong, Tracy L

Marshall, Henry

Patel, Dainik

Pavlakis, Nick

Philip, Jennifer

Rankin, Nicole

Singhal, Nimit

Stone, Emily

Tay, Rebecca

Vinod, Shalini

Windsor, Morgan

Wright, Gavin M

Leong, David

Zalcberg, John

Stirling, Rob G

PREVENTIVE MEDICINE

PUBLIC HEALTH

Quality in health care

RESPIRATORY MEDICINE (see Thoracic Medicine)

Respiratory tract tumours

Journal Article

0000-0002-0715-1405

0000-0001-8075-6219

0000-0001-9877-5450

0000-0002-1950-1505

10.1136/bmjopen-2022-060907

Lung cancer is the leading cause of cancer mortality, comprising the largest national cancer disease burden in Australia and New Zealand. Regional reports identify substantial evidence-practice gaps, unwarranted variation from best practice, and variation in processes and outcomes of care between treating centres. The Australia and New Zealand Lung Cancer Registry (ANZLCR) will be developed as a Clinical Quality Registry to monitor the safety, quality and effectiveness of lung cancer care in Australia and New Zealand. Patient participants will include all adults >18 years of age with a new diagnosis of non-small-cell lung cancer (NSCLC), SCLC, thymoma or mesothelioma. The ANZLCR will register confirmed diagnoses using opt-out consent. Data will address key patient, disease, management processes and outcomes reported as clinical quality indicators. Electronic data collection facilitated by local data collectors and local, state and federal data linkage will enhance completeness and accuracy. Data will be stored and maintained in a secure web-based data platform overseen by registry management. Central governance with binational representation from consumers, patients and carers, governance, administration, health department, health policy bodies, university research and healthcare workers will provide project oversight. The ANZLCR has received national ethics approval under the National Mutual Acceptance scheme. Data will be routinely reported to participating sites describing performance against measures of agreed best practice and nationally to stakeholders including federal, state and territory departments of health. Local, regional and (bi)national benchmarks, augmented with online dashboard indicator reporting will enable local targeting of quality improvement efforts.

link

BMJ Open 2022; 12(8): e060907

BMJ Open