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Title: | Including migrant oncology patients in research: A multisite pilot randomised controlled trial testing consultation audio-recordings and question prompt lists. | Austin Authors: | Hyatt, Amelia;Lipson-Smith, Ruby;Gough, Karla;Butow, Phyllis;Jefford, Michael;Hack, Thomas F;Hale, Sandra;Zucchi, Emiliano;White, Shane ;Ozolins, Uldis;Schofield, Penelope | Affiliation: | Department of Medicine, Northern Health, Melbourne, Australia.. Psycho-Oncology Cooperative Research Group, University of Sydney, Sydney, Australia.. Department of Psychological Sciences and Iverson Health Innovation Research Institute, Swinburne University of Technology, Melbourne, Australia.. Transcultural & Language Services, Northern Health, Melbourne, Australia.. School of Humanities and Languages, University of New South Wales, Sydney, Australia.. Department of Health Services Research and Implementation Science, Peter MacCallum Cancer Centre, Melbourne, Australia.. Sir Peter MacCallum Department of Oncology, University of Melbourne, Melbourne, Australia.. The Florey Institute of Neuroscience and Mental Health Department of Nursing, Faculty of Medicine, Dentistry and Health Sciences, University of Melbourne, Parkville, Australia.. Centre of Medical Psychology and Evidence-Based Decision-Making, University of Sydney, Sydney, Australia.. College of Nursing, Rady Faculty of Health Sciences, University of Manitoba, Winnipeg, Canada.. Psychosocial Oncology and Cancer Nursing Research, St. Boniface Research Centre, Winnipeg, Canada.. |
Issue Date: | 28-May-2022 | Date: | 2022-08 | Publication information: | Contemporary clinical trials communications 2022; 28: 100932 | Abstract: | Oncology patients who are migrants or refugees face worse outcomes due to language and communication barriers impacting care. Interventions such as consultation audio-recordings and question prompt lists may prove beneficial in mediating communication challenges. However, designing robust research inclusive of patients who do not speak English is challenging. This study therefore aimed to: a) pilot test and assess the appropriateness of the proposed research design and methods for engaging migrant populations, and b) determine whether a multi-site RCT efficacy assessment of the communication intervention utilising these methods is feasible. This study is a mixed-methods parallel-group, randomised controlled feasibility pilot trial. Feasibility outcomes comprised assessment of: i) screening and recruitment processes, ii) design and procedures, and iii) research time and costing. The communication intervention comprised audio-recordings of a key medical consultation with an interpreter, and question prompt lists and cancer information translated into Arabic, Greek, Traditional, and Simplified Chinese. Assessment of feasibility parameters revealed that despite barriers, methods utilised in this study supported the inclusion of migrant oncology patients in research. A future multi-site RCT efficacy assessment of the INFORM communication intervention using these methods is feasible if recommendations to strengthen screening and recruitment are adopted. Importantly, hiring of bilingual research assistants, and engagement with community and consumer advocates is essential. Early involvement of clinical and interpreting staff as key stakeholders is likewise recommended. Results from this feasibility RCT help us better understand and overcome the challenges and misconceptions about including migrant patients in clinical research. | URI: | https://ahro.austin.org.au/austinjspui/handle/1/30312 | DOI: | 10.1016/j.conctc.2022.100932 | ORCID: | 0000-0001-8307-3667 | Journal: | Contemporary clinical trials communications | PubMed URL: | 35677588 | PubMed URL: | https://pubmed.ncbi.nlm.nih.gov/35677588/ | Type: | Journal Article | Subjects: | Cancer Clinicial Trials Communication Consultation audio-recording Consultation recording Culturally and Linguistically Diverse (CALD) Migrants Question prompt lists |
Appears in Collections: | Journal articles |
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