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https://ahro.austin.org.au/austinjspui/handle/1/26812| Title: | Optimising participation of persons with cognitive impairment in a national dementia registry: challenges and solutions. | Austin Authors: | Lin, Xiaoping;Wallis, Kasey;Ahern, Susannah;Brodaty, Henry;Rowe, Christopher C ;Kain, Barbara;Lambourne, Sally;McNeil, John;Ward, Stephanie A | Affiliation: | Consumer Engagement, Dementia Australia, Sydney, New South Wales, Australia Dementia Centre for Research Collaboration, School of Psychiatry, University of New South Wales, Sydney, New South Wales, Australia Molecular Imaging and Therapy Florey Department of Neuroscience and Mental Health, The University of Melbourne, Melbourne, Victoria, Australia Carer representative, Melbourne, Victoria, Australia School of Public Health and Preventive Medicine, Monash University, Melbourne, Victoria, Australia Centre for Healthy Brain Ageing, School of Psychiatry, University of New South Wales, Sydney, New South Wales, Australia Department of Geriatric Medicine, The Prince of Wales Hospital, Sydney, New South Wales, Australia |
Issue Date: | Jun-2021 | Publication information: | Internal Medicine Journal 2021; 51(6): 988-992 | Abstract: | Clinical quality registries are increasingly utilised to monitor and improve healthcare quality. Opt-out consent is recommended to maximise participation and ensure validity of data, however, presents specific considerations when including persons with impaired decision-making abilities. This paper describes the innovative Australian Dementia Network Registry recruitment framework designed to optimise inclusion of people with dementia and mild cognitive impairment. | URI: | https://ahro.austin.org.au/austinjspui/handle/1/26812 | DOI: | 10.1111/imj.15357 | ORCID: | 0000-0002-8785-0694 | Journal: | Internal Medicine Journal | PubMed URL: | 34155757 | Type: | Journal Article | Subjects: | dementia informed consent neurodegenerative disorders quality of health care registries research ethics |
| Appears in Collections: | Journal articles |
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