1. AHRO : Austin Health Research Online
  2. Austin Health research
  3. Journal articles
Please use this identifier to cite or link to this item: https://ahro.austin.org.au/austinjspui/handle/1/26812
Full metadata record
DC FieldValueLanguage
dc.contributor.authorLin, Xiaoping-
dc.contributor.authorWallis, Kasey-
dc.contributor.authorAhern, Susannah-
dc.contributor.authorBrodaty, Henry-
dc.contributor.authorRowe, Christopher C-
dc.contributor.authorKain, Barbara-
dc.contributor.authorLambourne, Sally-
dc.contributor.authorMcNeil, John-
dc.contributor.authorWard, Stephanie A-
dc.date.accessioned2021-06-28T06:12:10Z-
dc.date.available2021-06-28T06:12:10Z-
dc.date.issued2021-06-
dc.identifier.citationInternal Medicine Journal 2021; 51(6): 988-992en
dc.identifier.urihttps://ahro.austin.org.au/austinjspui/handle/1/26812-
dc.description.abstractClinical quality registries are increasingly utilised to monitor and improve healthcare quality. Opt-out consent is recommended to maximise participation and ensure validity of data, however, presents specific considerations when including persons with impaired decision-making abilities. This paper describes the innovative Australian Dementia Network Registry recruitment framework designed to optimise inclusion of people with dementia and mild cognitive impairment.en
dc.language.isoeng
dc.subjectdementiaen
dc.subjectinformed consenten
dc.subjectneurodegenerative disordersen
dc.subjectquality of health careen
dc.subjectregistriesen
dc.subjectresearch ethicsen
dc.titleOptimising participation of persons with cognitive impairment in a national dementia registry: challenges and solutions.en
dc.typeJournal Articleen
dc.identifier.journaltitleInternal Medicine Journalen
dc.identifier.affiliationConsumer Engagement, Dementia Australia, Sydney, New South Wales, Australiaen
dc.identifier.affiliationDementia Centre for Research Collaboration, School of Psychiatry, University of New South Wales, Sydney, New South Wales, Australiaen
dc.identifier.affiliationMolecular Imaging and Therapyen
dc.identifier.affiliationFlorey Department of Neuroscience and Mental Health, The University of Melbourne, Melbourne, Victoria, Australiaen
dc.identifier.affiliationCarer representative, Melbourne, Victoria, Australiaen
dc.identifier.affiliationSchool of Public Health and Preventive Medicine, Monash University, Melbourne, Victoria, Australiaen
dc.identifier.affiliationCentre for Healthy Brain Ageing, School of Psychiatry, University of New South Wales, Sydney, New South Wales, Australiaen
dc.identifier.affiliationDepartment of Geriatric Medicine, The Prince of Wales Hospital, Sydney, New South Wales, Australiaen
dc.identifier.doi10.1111/imj.15357en
dc.type.contentTexten
dc.identifier.orcid0000-0002-8785-0694en
dc.identifier.pubmedid34155757
local.name.researcherRowe, Christopher C
item.fulltextNo Fulltext-
item.openairetypeJournal Article-
item.cerifentitytypePublications-
item.grantfulltextnone-
item.languageiso639-1en-
item.openairecristypehttp://purl.org/coar/resource_type/c_18cf-
crisitem.author.deptMolecular Imaging and Therapy-
Appears in Collections:Journal articles
Show simple item record

Page view(s)

44
checked on Feb 20, 2025

Google ScholarTM

Check


Items in AHRO are protected by copyright, with all rights reserved, unless otherwise indicated.