Please use this identifier to cite or link to this item: https://ahro.austin.org.au/austinjspui/handle/1/25293
Title: Exploring advance care planning awareness, experiences, and preferences of people with cancer and support people: an Australian online cross-sectional study.
Austin Authors: Rodi, Helena ;Detering, Karen M ;Sellars, Marcus ;Macleod, Ashley ;Todd, Julia G ;Fullerton, Sonia;Waller, Amy;Nolte, Linda 
Affiliation: Department of Palliative Medicine, Peter MacCallum Cancer Centre, Melbourne, Victoria, Australia
Australian Centre for Health Law Research, Queensland University of Technology, Brisbane, Queensland, Australia
School of Medicine and Public Health, University of Newcastle, Newcastle, New South Wales, Australia
Advance Care Planning
Faculty of Health, Arts and Innovation, Swinburne University, Melbourne, Australia
Issue Date: Jul-2021
Date: 2020-11-12
Publication information: Supportive Care in Cancer 2021; (7): 3677-3688
Abstract: To explore advance care planning (ACP) awareness, experiences, and preferences of people with cancer and support people of someone with cancer, in Australia. Descriptive analysis and independent group t tests were used to examine data from a national, online cross-sectional survey. Of 705 respondents (440 people with cancer, 265 support people), 48.5% of participants had heard of ACP prior to the survey and 65% had discussed their values or preferences with someone. Significantly more people aged under 65 years had discussed their preferences than their older counterparts. Most (93%) discussions occurred with family or friends, but only 3.7% occurred with a health professional. A total of 33% had documented their preferences, with support people, women, and people aged under 65 years significantly more likely to have signed a legal document appointing someone to make medical decisions on their behalf. Views varied about the preferred timing of ACP and end-of-life care discussions (38.3% when cancer is incurable compared to 20% at diagnosis). Only 3.0% did not want to discuss ACP at all. Topics discussed were significantly different based on cohort, gender, age group, treatment status, and region. Despite increasing community awareness of ACP, understanding remains low amongst cancer patients and support people, who generally rely on discussions with family and friends rather than health professionals. ACP should be introduced early across multiple interactions with health professionals, discuss a broad range of ACP relevant topics, and involve the cancer patient and their support person.
URI: https://ahro.austin.org.au/austinjspui/handle/1/25293
DOI: 10.1007/s00520-020-05878-z
Journal: Supportive Care in Cancer
PubMed URL: 33184712
Type: Journal Article
Subjects: Advance care directive
Advance care planning
Caregiver
End-of-life care
Oncology
Survey
Appears in Collections:Journal articles

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