Please use this identifier to cite or link to this item: https://ahro.austin.org.au/austinjspui/handle/1/34436
Title: Complex lived experiences and hidden disability after spinal cord injury: a latent profile analysis of the Australian arm of the International Spinal Cord Injury (Aus-InSCI) Community Survey.
Austin Authors: Kifley, Annette;Geraghty, Timothy J;Arora, Mohit;Bourke, John;Craig, Ashley;Cameron, Ian D;Nunn, Andrew K ;Marshall, Ruth;Middleton, James W
Affiliation: John Walsh Centre for Rehabilitation Research, Northern Sydney Local Health District, St Leonards, Sydney, Australia.;Kolling Institute, Faculty of Medicine and Health, University of Sydney, Sydney, Australia.
Queensland Spinal Cord Injuries Service, Division of Rehabilitation, Princess Alexandra Hospital, Metro South Health, Woolloongabba, Australia.;The Hopkins Centre, Metro South Health and Menzies Health Institute Queensland, Griffith University, Brisbane, Australia.
Kolling Institute, Faculty of Medicine and Health, University of Sydney, Sydney, Australia.;Burwood Academy Trust, Christchurch, New Zealand.
Victorian Spinal Cord Service
South Australian Spinal Cord Injury Service, Central Adelaide Local Health Network, Adelaide, Australia.;Faculty of Health and Medical Sciences, University of Adelaide, Adelaide, Australia.
Issue Date: 29-Nov-2023
Date: 2023
Publication information: Disability and Rehabilitation 2023-11-29
Abstract: To identify and examine subgroups of people with spinal cord injury (SCI) with different patterns of lived experience, and examine hidden impairments and disability among functionally independent and ambulant people. Latent profile analysis of population-based data from the Australian arm of the International Spinal Cord Injury (InSCI) Community survey (nā€‰=ā€‰1579). Latent subgroups reflected levels of functional independence and extent of problems with health, activity/participation, environmental barriers, and self-efficacy. Quality of life (QoL), psychological profiles, and activity/participation were often as good or better in participants who reported lower (vs. higher) functional independence alongside comparable burden of health problems and environmental barriers. QoL, mental health, and vitality reflected self-efficacy and problem burdens more closely than functional independence. Ambulant participants reported a substantial burden of underlying, potentially hidden impairments, with QoL and mental health similar to wheelchair users. Hidden disability among more independent and/or ambulant people with SCI can affect well-being substantially. Early and ongoing access to support, rehabilitation, and SCI specialist services is important irrespective of cause, type, severity of injury, and level of functional independence. Improved access to SCI expertise and equity of care would help to improve early recognition and management of hidden disability. Not applicable.
URI: https://ahro.austin.org.au/austinjspui/handle/1/34436
DOI: 10.1080/09638288.2023.2283101
ORCID: 
Journal: Disability and Rehabilitation
Start page: 1
End page: 12
PubMed URL: 38018422
ISSN: 1464-5165
Type: Journal Article
Subjects: International Classification of Functioning Disability and Health
Spinal cord injury
ambulation
functional independence
lived experience
physical functioning
quality of life
Appears in Collections:Journal articles

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