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Title: | A web-based intervention to promote physical activity in adolescents and young adults with cystic fibrosis: protocol for a randomized controlled trial. | Austin Authors: | Cox, Narelle S ;Eldridge, Beverley;Rawlings, Sarah;Dreger, Julianna;Corda, Jennifer;Hauser, Jennifer;Button, Brenda M;Bishop, Jennifer;Nichols, Amanda;Middleton, Anna;Ward, Nathan;Dwyer, Tiffany;Tomlinson, Owen W;Denford, Sarah;Barker, Alan R;Williams, Craig A;Kingsley, Michael;O'Halloran, Paul;Holland, Anne E | Affiliation: | Institute for Breathing and Sleep School of Psychology and Public Health, La Trobe University, Bundoora, Vic, 3086, Australia Monash University, Clayton, Vic, 3168, Australia Physiotherapy and Cystic Fibrosis Services, 8E055.08, Royal Adelaide Hospital, Port Road, Adelaide, SA, 5000, Australia Monash University Central Clinical School, The Alfred Centre, 99 Commercial Road, Melbourne, Vic, 3004, Australia La Trobe University Clinical School, Level 4, The Alfred Centre, 99 Commercial Road, Melbourne, Vic, 3004, Australia Monash Children's Hospital 246 Clayton Rd, Clayton, Vic, 3168, Australia Departments of Physiotherapy and Respiratory Medicine Alfred Health, Melbourne, Australia Physiotherapy Department Royal Children's Hospital, 50 Flemington Road Parkville, Victoria, 3052, Australia Tasmanian Adult Cystic Fibrosis Unit, Royal Hobart Hospital, GPO Box 1061, Hobart, Tasmania, 7000, Australia Department of Medicine, Nursing and Health Sciences, Monash University, 55 Commercial Road, Melbourne, Vic, 3004, Australia Adult Cystic Fibrosis Service, Westmead Hospital, PO Box 533, Wentworthville, NSW, 2145, Australia Monash Health CF Service, 246 Clayton Rd, Clayton, Victoria, 3168, Australia Physiotherapy Department, Children's Hospital at Westmead, Hawkesbury Road, Westmead, NSW, 2145, Australia Discipline of Physiotherapy, Faculty of Health Sciences, The University of Sydney, PO Box 170, Lidcombe, NSW, 1825, Australia La Trobe Rural Health School, La Trobe University, Bendigo, Vic, 3552, Australia Children's Health & Exercise Research Centre (CHERC), Sport and Health Sciences, College of Life and Environmental Sciences, St. Luke's Campus, University of Exeter, Heavitree Road, Exeter, Devon, EX1 2LU, UK Alfred Clinical School Level 4, The Alfred Centre, 99 Commercial Road, Melbourne, Vic, 3004, Australia La Trobe University, Bundoora Vic 3086, Australia |
Issue Date: | 19-Dec-2019 | Date: | 2019 | Publication information: | BMC pulmonary medicine 2019; 19(1): 253 | Abstract: | Regular participation in physical activity by people with cystic fibrosis (CF) promotes positive clinical and health outcomes including reduced rate of decline in lung function, fewer hospitalizations and greater wellbeing. However adherence to exercise and activity programs is low, in part due to the substantial daily therapy burden for young people with CF. Strict infection control requirements limit the role of group exercise programs that are commonly used in other clinical groups. Investigation of methods to promote physical activity in this group has been limited. The Active Online Physical Activity in Cystic fibrosis Trial (ActionPACT) is an assessor-blinded, multi-centre, randomized controlled trial designed to compare the efficacy of a novel web-based program (ActivOnline) compared to usual care in promoting physical activity participation in adolescents and young adults with CF. Adolescents and young adults with CF will be recruited on discharge from hospital for a respiratory exacerbation. Participants randomized to the intervention group will have access to a web-based physical activity platform for the 12-week intervention period. ActivOnline allows users to track their physical activity, set goals, and self-monitor progress. All participants in both groups will be provided with standardised information regarding general physical activity recommendations for adolescents and young adults. Outcomes will be assessed by a blinded assessor at baseline, after completion of the intervention, and at 3-months followup. Healthcare utilization will be assessed at 12 months from intervention completion. The primary outcome is change in moderate-to-vigorous physical activity participation measured objectively by accelerometry. Secondary outcomes include aerobic fitness, health-related quality of life, anxiety and depression and sleep quality. This trial will establish whether a web-based application can improve physical activity participation more effectively than usual care in the period following hospitalization for a respiratory exacerbation. The web-based application under investigation can be made readily and widely available to all individuals with CF, to support physical activity and exercise participation at a time and location of the user's choosing, regardless of microbiological status. Clinical trial registered on July 13, 2017 with the Australian and New Zealand Clinical Trials Register at (ACTRN12617001009303). | URI: | https://ahro.austin.org.au/austinjspui/handle/1/28116 | DOI: | 10.1186/s12890-019-0942-3 | ORCID: | 0000-0002-6977-1028 0000-0003-2061-845X |
Journal: | BMC pulmonary medicine | PubMed URL: | 31856791 | PubMed URL: | https://pubmed.ncbi.nlm.nih.gov/31856791/ | Type: | Journal Article | Subjects: | Application Exercise Goal setting Online Physical fitness Telerehabilitation |
Appears in Collections: | Journal articles |
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