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Title: A web-based intervention to promote physical activity in adolescents and young adults with cystic fibrosis: protocol for a randomized controlled trial.
Austin Authors: Cox, Narelle S ;Eldridge, Beverley;Rawlings, Sarah;Dreger, Julianna;Corda, Jennifer;Hauser, Jennifer;Button, Brenda M;Bishop, Jennifer;Nichols, Amanda;Middleton, Anna;Ward, Nathan;Dwyer, Tiffany;Tomlinson, Owen W;Denford, Sarah;Barker, Alan R;Williams, Craig A;Kingsley, Michael;O'Halloran, Paul;Holland, Anne E 
Affiliation: Institute for Breathing and Sleep
School of Psychology and Public Health, La Trobe University, Bundoora, Vic, 3086, Australia
Monash University, Clayton, Vic, 3168, Australia
Physiotherapy and Cystic Fibrosis Services, 8E055.08, Royal Adelaide Hospital, Port Road, Adelaide, SA, 5000, Australia
Monash University Central Clinical School, The Alfred Centre, 99 Commercial Road, Melbourne, Vic, 3004, Australia
La Trobe University Clinical School, Level 4, The Alfred Centre, 99 Commercial Road, Melbourne, Vic, 3004, Australia
Monash Children's Hospital 246 Clayton Rd, Clayton, Vic, 3168, Australia
Departments of Physiotherapy and Respiratory Medicine Alfred Health, Melbourne, Australia
Physiotherapy Department Royal Children's Hospital, 50 Flemington Road Parkville, Victoria, 3052, Australia
Tasmanian Adult Cystic Fibrosis Unit, Royal Hobart Hospital, GPO Box 1061, Hobart, Tasmania, 7000, Australia
Department of Medicine, Nursing and Health Sciences, Monash University, 55 Commercial Road, Melbourne, Vic, 3004, Australia
Adult Cystic Fibrosis Service, Westmead Hospital, PO Box 533, Wentworthville, NSW, 2145, Australia
Monash Health CF Service, 246 Clayton Rd, Clayton, Victoria, 3168, Australia
Physiotherapy Department, Children's Hospital at Westmead, Hawkesbury Road, Westmead, NSW, 2145, Australia
Discipline of Physiotherapy, Faculty of Health Sciences, The University of Sydney, PO Box 170, Lidcombe, NSW, 1825, Australia
La Trobe Rural Health School, La Trobe University, Bendigo, Vic, 3552, Australia
Children's Health & Exercise Research Centre (CHERC), Sport and Health Sciences, College of Life and Environmental Sciences, St. Luke's Campus, University of Exeter, Heavitree Road, Exeter, Devon, EX1 2LU, UK
Alfred Clinical School Level 4, The Alfred Centre, 99 Commercial Road, Melbourne, Vic, 3004, Australia
La Trobe University, Bundoora Vic 3086, Australia
Issue Date: 19-Dec-2019
Date: 2019
Publication information: BMC pulmonary medicine 2019; 19(1): 253
Abstract: Regular participation in physical activity by people with cystic fibrosis (CF) promotes positive clinical and health outcomes including reduced rate of decline in lung function, fewer hospitalizations and greater wellbeing. However adherence to exercise and activity programs is low, in part due to the substantial daily therapy burden for young people with CF. Strict infection control requirements limit the role of group exercise programs that are commonly used in other clinical groups. Investigation of methods to promote physical activity in this group has been limited. The Active Online Physical Activity in Cystic fibrosis Trial (ActionPACT) is an assessor-blinded, multi-centre, randomized controlled trial designed to compare the efficacy of a novel web-based program (ActivOnline) compared to usual care in promoting physical activity participation in adolescents and young adults with CF. Adolescents and young adults with CF will be recruited on discharge from hospital for a respiratory exacerbation. Participants randomized to the intervention group will have access to a web-based physical activity platform for the 12-week intervention period. ActivOnline allows users to track their physical activity, set goals, and self-monitor progress. All participants in both groups will be provided with standardised information regarding general physical activity recommendations for adolescents and young adults. Outcomes will be assessed by a blinded assessor at baseline, after completion of the intervention, and at 3-months followup. Healthcare utilization will be assessed at 12 months from intervention completion. The primary outcome is change in moderate-to-vigorous physical activity participation measured objectively by accelerometry. Secondary outcomes include aerobic fitness, health-related quality of life, anxiety and depression and sleep quality. This trial will establish whether a web-based application can improve physical activity participation more effectively than usual care in the period following hospitalization for a respiratory exacerbation. The web-based application under investigation can be made readily and widely available to all individuals with CF, to support physical activity and exercise participation at a time and location of the user's choosing, regardless of microbiological status. Clinical trial registered on July 13, 2017 with the Australian and New Zealand Clinical Trials Register at (ACTRN12617001009303).
DOI: 10.1186/s12890-019-0942-3
ORCID: 0000-0002-6977-1028
Journal: BMC pulmonary medicine
PubMed URL: 31856791
PubMed URL:
Type: Journal Article
Subjects: Application
Goal setting
Physical fitness
Appears in Collections:Journal articles

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