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Title: Valuing the voice of lived experience of eating disorders in the research process: Benefits and considerations.
Austin Authors: Musić, Selma;Elwyn, Rosiel;Fountas, Grace;Gnatt, Inge;Jenkins, Zoe M;Malcolm, Amy;Miles, Stephanie;Neill, Erica;Simpson, Tamara;Yolland, Caitlin Ob;Phillipou, Andrea 
Affiliation: Sunshine Coast Mind and Neuroscience Thompson Institute, University of the Sunshine Coast, Birtinya, QLD, Australia
Centre for Mental Health, Swinburne University of Technology, Hawthorn, VIC, Australia
Department of Mental Health, St Vincent's Hospital, Melbourne, Fitzroy, VIC, Australia
Department of Psychiatry, The University of Melbourne, Melbourne, VIC, Australia
Mental Health
Centre for Human Psychopharmacology, Swinburne University of Technology, Melbourne, VIC, Australia
Issue Date: 2022
Date: 2021-03-15
Publication information: The Australian and New Zealand journal of psychiatry 2022; 56(3): 216-218
Abstract: Although the inclusion of individuals with lived experience is encouraged within the research process, there remains inconsistent direct involvement in many mental health fields. Within the eating disorders field specifically, there is a very strong and increasing presence of lived experience advocacy. However, due to a number of potential challenges, research undertaken in consultation or in collaboration with individuals with lived experience of an eating disorder is scarce. This paper describes the significant benefits of the inclusion of individuals with lived experience in research. The specific challenges and barriers faced in eating disorders research are also outlined. It is concluded that in addition to existing guidelines on working with lived experience collaborators in mental health research, more specific procedures are required when working with those with eating disorders.
DOI: 10.1177/0004867421998794
ORCID: 0000-0003-1657-153X
Journal: The Australian and New Zealand Journal of Psychiatry
PubMed URL: 33715452
Type: Journal Article
Subjects: Eating disorder
anorexia nervosa
body image
lived experience
peer worker
Appears in Collections:Journal articles

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