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Title: | Valuing the voice of lived experience of eating disorders in the research process: Benefits and considerations. | Austin Authors: | Musić, Selma;Elwyn, Rosiel;Fountas, Grace;Gnatt, Inge;Jenkins, Zoe M;Malcolm, Amy;Miles, Stephanie;Neill, Erica;Simpson, Tamara;Yolland, Caitlin Ob;Phillipou, Andrea | Affiliation: | Sunshine Coast Mind and Neuroscience Thompson Institute, University of the Sunshine Coast, Birtinya, QLD, Australia Centre for Mental Health, Swinburne University of Technology, Hawthorn, VIC, Australia Department of Mental Health, St Vincent's Hospital, Melbourne, Fitzroy, VIC, Australia Department of Psychiatry, The University of Melbourne, Melbourne, VIC, Australia Mental Health Centre for Human Psychopharmacology, Swinburne University of Technology, Melbourne, VIC, Australia |
Issue Date: | 2022 | Date: | 2021-03-15 | Publication information: | The Australian and New Zealand journal of psychiatry 2022; 56(3): 216-218 | Abstract: | Although the inclusion of individuals with lived experience is encouraged within the research process, there remains inconsistent direct involvement in many mental health fields. Within the eating disorders field specifically, there is a very strong and increasing presence of lived experience advocacy. However, due to a number of potential challenges, research undertaken in consultation or in collaboration with individuals with lived experience of an eating disorder is scarce. This paper describes the significant benefits of the inclusion of individuals with lived experience in research. The specific challenges and barriers faced in eating disorders research are also outlined. It is concluded that in addition to existing guidelines on working with lived experience collaborators in mental health research, more specific procedures are required when working with those with eating disorders. | URI: | https://ahro.austin.org.au/austinjspui/handle/1/26106 | DOI: | 10.1177/0004867421998794 | ORCID: | 0000-0003-1657-153X 0000-0002-9495-2306 0000-0002-8551-0792 0000-0002-9746-8712 0000-0001-8190-894X 0000-0003-1182-4841 0000-0002-1942-1492 |
Journal: | The Australian and New Zealand Journal of Psychiatry | PubMed URL: | 33715452 | Type: | Journal Article | Subjects: | Eating disorder anorexia nervosa body image lived experience peer worker research |
Appears in Collections: | Journal articles |
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