Please use this identifier to cite or link to this item: https://ahro.austin.org.au/austinjspui/handle/1/25554
Title: Availability, coverage, and scope of health information systems for kidney care across world countries and regions.
Austin Authors: See, Emily J ;Bello, Aminu K;Levin, Adeera;Lunney, Meaghan;Osman, Mohamed A;Ye, Feng;Ashuntantang, Gloria E;Bellorin-Font, Ezequiel;Benghanem Gharbi, Mohammed;Davison, Sara;Ghnaimat, Mohammad;Harden, Paul;Htay, Htay;Jha, Vivekanand;Kalantar-Zadeh, Kamyar;Kerr, Peter G;Klarenbach, Scott;Kovesdy, Csaba P;Luyckx, Valerie;Neuen, Brendon;O'Donoghue, Donal;Ossareh, Shahrzad;Perl, Jeffrey;Rashid, Harun Ur;Rondeau, Eric;Syed, Saad;Sola, Laura;Tchokhonelidze, Irma;Tesar, Vladimir;Tungsanga, Kriang;Kazancioglu, Rumeyza Turan;Wang, Angela Yee-Moon;Yang, Chih-Wei;Zemchenkov, Alexander;Zhao, Ming-Hui;Jager, Kitty J;Caskey, Fergus;Perkovic, Vlado;Jindal, Kailash K;Okpechi, Ikechi G;Tonelli, Marcello;Feehally, John;Harris, David C;Johnson, David W
Affiliation: Division of Nephrology and Immunology, Department of Medicine, University of Alberta, Edmonton, AB,Canada
Division of Nephrology, Department of Medicine, University of British Columbia, Vancouver, BC,Canada
Department of Community Health Sciences, University of Calgary, Calgary, AB,Canada
Division of Nephrology and Immunology, Department of Medicine, University of Alberta, Edmonton, AB,Canada
Faculty of Medicine and Biomedical Sciences, Yaounde General Hospital, University of Yaounde I, Yaoundé,Cameroon
Division of Nephology and Hypertension, Department of Medicine, St Louis University, St Louis, MO,USA
Urinary Tract Diseases Department, Faculty of Medicine and Pharmacy of Casablanca, University Hassan II of Casablanca, Casablanca, Morocco
Division of Nephrology and Immunology, Department of Medicine, University of Alberta, Edmonton, AB,Canada
Nephrology Division, Department of Internal Medicine, The Specialty Hospital, Amman,Jordan
Oxford Kidney Unit, Oxford University Hospitals NHS Foundation Trust, Oxford,UK
Department of Renal Medicine, Singapore General Hospital, Singapore,Singapore
Division of Nephrology and Hypertension, University of California Irvine Medical Center, Orange, CA,USA
Division of Nephrology and Immunology, Department of Medicine, University of Alberta, Edmonton, AB,Canada
Department of Medicine, University of Tennessee Health Science Center, Memphis, TN,USA
Division of Nephrology, Hasheminejad Kidney Center, Department of Medicine,IranUniversity of Medical Sciences, Tehran,Iran
Department of Nephrology, Kidney Foundation Hospital and Research Institute, Dhaka,Bangladesh
Division of Nephrology and Immunology, Department of Medicine, University of Alberta, Edmonton, AB,Canada
Dialysis Unit, CASMU-IAMPP, Montevideo,Uruguay
Nephrology Development Clinical Center, Tbilisi State Medical University, Tbilisi, Georgia
Department of Nephrology, General University Hospital, Charles University, Prague, Czechia
Division of Nephrology, Bezmialem Vakif University, Istanbul,Turkey
Department of Medicine, Queen Mary Hospital, The University of Hong Kong,Hong Kong
Kidney Research Center, Department of Nephrology, Chang Gung Memorial Hospital, Chang Gung University College of Medicine, Taoyuan,Taiwan
ERA-EDTA Registry, Academic Medical Center, Department of Medical Informatics, Amsterdam Public Health Research Institute, University of Amsterdam, Amsterdam,The Netherlands
University of Leicester, Leicester,UK
Metro South and Ipswich Nephrology and Transplant Services (MINTS), Princess Alexandra Hospital, Brisbane, QLD,Australia
Key Laboratory of Renal Disease, Ministry of Health of China, Beijing,China
Key Laboratory of Chronic Kidney Disease Prevention and Treatment, Ministry of Education of China, Beijing,China
Peking-Tsinghua Center for Life Sciences (CLS), Beijing,China
Department of Internal Disease and Nephrology, North-Western State Medical University named after I.I. Mechnikov, St Petersburg, Russian Federation
Department of Nephrology and Dialysis, Pavlov First Saint Petersburg State Medical University, St Petersburg, Russian Federation
Department of Medicine, Faculty of Medicine, King Chulalong Memorial Hospital, Chulalongkorn University, Bangkok,Thailand
Bhumirajanagarindra Kidney Institute, Bangkok,Thailand
Intensive Care Nephrology and Transplantation Department, Assistance Publique-Hopitaux de Paris, Hopital Tenon, Paris,France
Sorbonne Université, Paris,France
Division of Nephrology, St Michael's Hospital and Keenan Research Centre, Li Ka Shing Knowledge Institute, Toronto, ON,Canada
Division of Nephrology, Department of Medicine, University of Toronto, Toronto, ON,Canada
Salford Royal NHS Foundation Trust, Salford,UK
University of Manchester, Manchester,UK
Institute of Biomedical Ethics and the History of Medicine, University of Zurich, Zurich,Switzerland
Renal Division, Harvard Medical School, Brigham and Women's Hospital, Boston, MA,USA
School of Medicine, University of Melbourne, Melbourne, VIC,Australia
The George Institute for Global Health, University of New South Wales Sydney, Sydney, NSW,Australia
The George Institute for Global Health, Newtown, NSW,Australia
Centre for Transplantation and Renal Research, Westmead Institute for Medical Research, University of Sydney, Sydney, NSW,Australia
Pan-American Health Organization/World Health Organization's Collaborating Centre in Prevention and Control of Chronic Kidney Disease, University of Calgary, Calgary, AB,Canada
Department of Medicine, University of Calgary, Calgary, AB,Canada
Intensive Care
Monash Medical Centre, Department of Nephrology, Monash Health, Clayton, VIC,Australia
Department of Medicine, Monash University, Clayton, VIC,Australia
Centre for Kidney Disease Research, University of Queensland, Brisbane, QLD,Australia
Translational Research Institute, Brisbane, QLD,Australia
George Institute for Global Health India, New Delhi,India
Nuffield Department of Clinical Medicine, University of Oxford, Oxford,UK
Division of Nephrology and Hypertension, University of Cape Town, Cape Town,South Africa
Kidney and Hypertension Research Unit, University of Cape Town, Cape Town,South Africa
UK Renal Registry, Learning and Research Building, Southmead Hospital, Bristol,UK
Population Health Sciences, University of Bristol, Bristol,UK
The Richard Bright Renal Unit, Southmead Hospital, North Bristol NHS Trust, Bristol,UK
Renal Division, Department of Medicine, Peking University First Hospital, Beijing,China
Issue Date: 2021
Date: 2020-12-22
Publication information: Nephrology, dialysis, transplantation : official publication of the European Dialysis and Transplant Association - European Renal Association 2021; 37(1): 159-167
Abstract: Health information systems (HIS) are fundamental tools for the surveillance of health services, estimation of disease burden and prioritization of health resources. Several gaps in the availability of HIS for kidney disease were highlighted by the first iteration of the Global Kidney Health Atlas. As part of its second iteration, the International Society of Nephrology conducted a cross-sectional global survey between July and October 2018 to explore the coverage and scope of HIS for kidney disease, with a focus on kidney replacement therapy (KRT). Out of a total of 182 invited countries, 154 countries responded to questions on HIS (85% response rate). KRT registries were available in almost all high-income countries, but few low-income countries, while registries for non-dialysis chronic kidney disease (CKD) or acute kidney injury (AKI) were rare. Registries in high-income countries tended to be national, in contrast to registries in low-income countries, which often operated at local or regional levels. Although cause of end-stage kidney disease, modality of KRT and source of kidney transplant donors were frequently reported, few countries collected data on patient-reported outcome measures and only half of low-income countries recorded process-based measures. Almost no countries had programs to detect AKI and practices to identify CKD-targeted individuals with diabetes, hypertension and cardiovascular disease, rather than members of high-risk ethnic groups. These findings confirm significant heterogeneity in the global availability of HIS for kidney disease and highlight important gaps in their coverage and scope, especially in low-income countries and across the domains of AKI, non-dialysis CKD, patient-reported outcomes, process-based measures and quality indicators for KRT service delivery.
URI: https://ahro.austin.org.au/austinjspui/handle/1/25554
DOI: 10.1093/ndt/gfaa343
Journal: Nephrology, Dialysis, Transplantation
PubMed URL: 33351951
Type: Journal Article
Subjects: chronic kidney disease
end-stage kidney disease
health information systems
kidney replacement therapy
registries
Appears in Collections:Journal articles

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