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Title: Comparison of self-report and administrative data sources to capture health care resource use in people with chronic obstructive pulmonary disease following pulmonary rehabilitation.
Austin Authors: Grimwood, Chantal L;Holland, Anne E ;McDonald, Christine F ;Mahal, Ajay;Hill, Catherine J ;Lee, Annemarie L;Cox, Narelle S ;Moore, Rosemary P ;Nicolson, Caroline;O'Halloran, Paul;Lahham, Aroub;Gillies, Rebecca;Burge, Angela T 
Affiliation: Department of Allergy, Immunology and Respiratory Medicine, Monash University, Level 6, The Alfred Centre, 99 Commercial Rd, Melbourne, VIC, 3004, Australia
Respiratory and Sleep Medicine
Department of Medicine, The University of Melbourne, Parkville, VIC, 3010, Australia
La Trobe University Clinical School, Level 4 The Alfred Centre, 99 Commercial Road, Melbourne, VIC, 3004, Australia
Physiotherapy, The Alfred, PO Box 315, Prahran, VIC, 3181, Australia
Institute for Breathing and Sleep
Physiotherapy, Monash University, Building B, McMahons Rd, Frankston, VIC, 3199, Australia
Public Health, La Trobe University, Bundoora, VIC, 3086, Australia
The Nossal Institute for Global Health, The University of Melbourne, Parkville, VIC, 3010, Australia
Issue Date: 23-Nov-2020 2020
Publication information: BMC Health Services Research 2020; 20(1):1061
Abstract: The optimal method to collect accurate healthcare utilisation data in people with chronic obstructive pulmonary disease (COPD) is not well established. The aim of this study was to determine feasibility and compare self-report and administrative data sources to capture health care resource use in people with COPD for 12 months following pulmonary rehabilitation. This is a secondary analysis of a randomised controlled equivalence trial comparing centre-based and home-based pulmonary rehabilitation. Healthcare utilisation data were collected for 12 months following pulmonary rehabilitation from self-report (monthly telephone questionnaires and diaries) and administrative sources (Medicare Benefits Schedule, medical records). Feasibility was assessed by the proportion of self-reports completed and accuracy was established using month-by-month and per participant comparison of self-reports with administrative data. Data were available for 145/163 eligible study participants (89%, mean age 69 (SD 9) years, mean forced expiratory volume in 1 s 51 (SD 19) % predicted; n = 83 male). For 1725 months where data collection was possible, 1160 (67%) telephone questionnaires and 331 (19%) diaries were completed. Accuracy of recall varied according to type of health care encounter and self-report method, being higher for telephone questionnaire report of emergency department presentation (Kappa 0.656, p < 0.001; specificity 99%, sensitivity 59%) and hospital admission (Kappa 0.669, p < 0.001; specificity 97%, sensitivity 68%) and lower for general practitioner (Kappa 0.400, p < 0.001; specificity 62%, sensitivity 78%) and medical specialist appointments (Kappa 0.458, p < 0.001; specificity 88%, sensitivity 58%). A wide variety of non-medical encounters were reported (allied health and nursing) which were not captured in administrative data. For self-reported methods of healthcare utilisation in people with COPD following pulmonary rehabilitation, monthly telephone questionnaires were more frequently completed and more accurate than diaries. Compared to administrative records, self-reports of emergency department presentations and inpatient admissions were more accurate than for general practitioner and medical specialist appointments. NCT01423227 at
DOI: 10.1186/s12913-020-05920-0
ORCID: 0000-0001-5455-6467
PubMed URL: 33228654
Type: Journal Article
Subjects: Accuracy
Health care utilisation
Medical records
Appears in Collections:Journal articles

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