Please use this identifier to cite or link to this item: http://ahro.austin.org.au/austinjspui/handle/1/23565
Title: Investigation burden for patients with fibrotic interstitial lung disease at the end of life.
Authors: Guo, Hui;Mann, Jennifer;Goh, Nicole S L;Smallwood, Natasha
Affiliation: Department of Medicine (Royal Melbourne Hospital), University of Melbourne, Melbourne, Victoria, Australia
Department of Respiratory and Sleep Medicine, The Royal Melbourne Hospital, Melbourne, Victoria, Australia
Department of Respiratory and Sleep Medicine, Austin Health, Heidelberg, Victoria, Australia
Institute for Breathing and Sleep, Austin Health, Heidelberg, Victoria, Australia
Issue Date: Jun-2020
Citation: Internal Medicine Journal 2020; 50(6): 748-752
Abstract: Fibrotic interstitial lung disease (f-ILD) has a guarded prognosis, and the goal of therapy in advanced-stage disease should be symptom-based. Despite this, patients may still undergo burdensome investigation at the end of life. A retrospective audit was performed on 67 patients who died from f-ILD at the Royal Melbourne and Austin Hospitals between 2012 and 2016. Increased investigation burden was associated with lack of outpatient palliative care referral and documented advance care plan, and admission to a high-dependency unit. Eighteen per cent of patients underwent ongoing investigations after the institution of comfort care. These findings highlight the unmet end-of-life care needs of people with f-ILD.
URI: http://ahro.austin.org.au/austinjspui/handle/1/23565
DOI: 10.1111/imj.14856
ORCID: 0000-0001-7771-9302
0000-0002-3403-3586
PubMed URL: 32537928
Type: Journal Article
Subjects: end-of-life care
interstitial lung disease
investigation
palliative care
pulmonary fibrosis
Appears in Collections:Journal articles

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