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Title: Keeping people with epilepsy safe during the Covid-19 pandemic.
Austin Authors: French, Jacqueline A;Brodie, Martin J;Caraballo, Roberto;Devinsky, Orrin;Ding, Ding;Jehi, Lara;Jette, Nathalie;Kanner, Andres;Modi, Avani C;Newton, Charles R;Patel, Archana A;Pennell, Page B;Perucca, Emilio;Sander, Josemir W;Scheffer, Ingrid E ;Singh, Gagandeep;Williams, Emma;Wilmshurst, Jo;Cross, J Helen
Affiliation: Austin Health, Heidelberg, Victoria, Australia
Department of Paediatric Neurology, Red Cross War Memorial Children's Hospital, Neuroscience Institute, Cape Town, South Africa
UCL NIHR BRC Great Ormond Street Institute of Child Health, Great Ormond Street Hospital for Children, London, United Kingdom
ERN EpiCARE, Young Epilepsy, Lingfield, United Kingdom
From the Department Neurology, NYU Grossman School of Medicine New York University, NY
Epilepsy Unit, International Bureau for Epilepsy, Scottish Epilepsy Initiative, Glasgow, Scotland
Neurology, Hospital J P Garrahan, Buenos Aires, AR
Department Neurology, NYU Grossman School of Medicine, NY
Institute of Neurology, Huashan Hospital, Fudan University, Shanghai, China
Cleveland Clinic Epilepsy Center, Cleveland, OH
Department of Neurology, Icahn School of Medicine at Mount Sinai, New York, NY
Division of Epilepsy, Department of Neurology, Miller School of Medicine, University of Miami, FL
Cincinnati Children's Hospital Medical Center, School of Medicine, University of Cincinnati, OH
KEMRI-Wellcome Programme, Kilifi, Kenya
Department of Psychiatry, University of Oxford, United Kingdom
Division of Epilepsy and Clinical Neurophysiology, Department of Neurology, Harvard Medical School, Boston Children's Hospital, MA
Harvard Medical School, Brigham and Women's Hospital, Boston, MA
Department of Internal Medicine and Therapeutics, University of Pavia and IRCCS Mondino Foundation, Member of the ERN EpiCARE, Pavia, Italy
UCL Queen Square Institute of Neurology, London, United Kingdom
Stichting Epilepsie Instelligen Nederland (SEIN), Heemstede, Netherlands
University of Melbourne, and Royal Children's Hospitals, Florey and Murdoch Children's Research Institutes, Melbourne, Australia
Dayanand Medical College, Ludhiana, India
Matthew's Friends-Ketogenic Dietary Therapies, London, United Kingdom
Issue Date: Jun-2020 2020-04-23
Publication information: Neurology 2020; 94(23): 1032-1037
Abstract: To provide information on the impact of the COVID-19 pandemic on people with epilepsy and provide consensus recommendations on how to provide the best possible care for people with epilepsy while avoiding visits to urgent care facilities and hospitalizations during the Novel Coronavirus pandemic. The authors developed consensus statements in 2 sections. The first was "How should we/clinicians modify our clinical care pathway for people with epilepsy during the COVID-19 pandemic?" The second was "What general advice should we give to people with epilepsy during this crisis? Authors individually scored statements on a scale of -10 (strongly disagree) to +10 (strongly agree). 5/11 recommendations for physicians and 3/5 recommendations for individuals/families were rated by all authors as 7 or above (strongly agree) on the first round of rating. Subsequently, a tele-conference was held where statements for which there was a lack of strong consensus were revised. After revision, all consensus recommendations received a score of 7 or above. The recommendations focus on administration of as much care as possible at home to keep people with epilepsy out of health care facilities, where they are likely to encounter COVID-19 (including strategies for rescue therapy), as well as minimization of risk of seizure exacerbation through adherence, and through ensuring a regular supply of medication. We also provide helpful links to additional helpful information for people with epilepsy and health providers. These recommendation may help healthcare professionals provide optimal care to people with epilepsy during the coronavirus pandemic.
DOI: 10.1212/WNL.0000000000009632
ORCID: 0000-0002-2311-2174
PubMed URL: 32327490
Type: Journal Article
Subjects: COVID-19
Appears in Collections:Journal articles

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