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Title: Patient perceptions of participation in emergency medicine research projects.
Austin Authors: de Tonnerre, Erik J;Smith, Jesse L;Spencer, William S;Date, Patrick A ;Taylor, David McD 
Affiliation: Northern Sydney Local Health District, NSW Health, Sydney, New South Wales, Australia
Austin Health, Heidelberg, Victoria, Australia
Alfred Health, Melbourne, Victoria, Australia
Central Gippsland Health, Sale, Victoria, Australia
Department of Emergency Medicine, Austin Health, Heidelberg, Victoria, Australia
Department of Medicine, The University of Melbourne, Melbourne, Victoria, Australia
Issue Date: Aug-2020 2020-02-10
Publication information: Emergency Medicine Australasia : EMA 2020; 32(4): 570-572
Abstract: To determine if ED research reflects patient expectations. A cross-sectional ED patient survey. Three hundred and nine (98.1%, 95% confidence interval [CI] 95.7-99.2) of 315 patients believed that ED research was important. Two hundred and twelve (68.4%, 95% CI 62.9-73.5) would welcome involvement, only 26 (8.4%, 95% CI 5.7-12.3) felt pressured to do so. Two hundred and thirty-one (75.7%, 95% CI 70.5-80.4) and 279 (91.5%, 95% CI 87.6-94.3) believed consent was necessary for observational and experimental studies, respectively. One hundred and one (32.4%, 95% CI 27.3-37.9) disagreed with medical records being accessed without consent. Patient expectations are not always consistent with current practice. The expectation of consent prior to record access is worthy of further consideration.
DOI: 10.1111/1742-6723.13455
ORCID: 0000-0002-8986-9997
PubMed URL: 32043294
Type: Journal Article
Subjects: emergency department
informed consent
Appears in Collections:Journal articles

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