Please use this identifier to cite or link to this item: https://ahro.austin.org.au/austinjspui/handle/1/22180
Title: HOMESIDE: home-based family caregiver-delivered music and reading interventions for people living with dementia: protocol of a randomised controlled trial.
Austin Authors: Baker, Felicity Anne;Bloska, Jodie;Braat, Sabine;Bukowska, Anna;Clark, Imogen;Hsu, Ming H;Kvamme, Tone;Lautenschlager, Nicola;Lee, Young-Eun Claire;Smrokowska-Reichmann, Agnieszka;Sousa, Tanara Vieira;Stensaeth, Karette A;Tamplin, Jeanette ;Wosch, Thomas;Odell-Miller, Helen
Affiliation: Cambridge Institute for Music Therapy Research, Anglia Ruskin University, Cambridge, UK
Faculty of Fine Arts and Music, The University of Melbourne, Melbourne, Victoria, Australia
School of Population and Global Health, The University of Melbourne, Melbourne, Victoria, Australia
Department of Occupational Therapy, University of Physical Education, Kraków, Poland
Faculty of Fine Arts and Music, The University of Melbourne, Melbourne, Victoria, Australia
Austin Health, Heidelberg, Victoria, Australia
Cambridge Institute for Music Therapy Research, Anglia Ruskin University, Cambridge, UK
Centre for Research in Music and Health, Norwegian Academy of Music, Oslo, Norway
Department of Psychiatry, The University of Melbourne, Melbourne, Victoria, Australia
NorthWestern Mental Health, Melbourne Health, Melbourne, Victoria, Australia
Faculty of Fine Arts and Music, The University of Melbourne, Melbourne, Victoria, Australia
Department of Occupational Therapy, University of Physical Education, Kraków, Poland
School of Population and Global Health, The University of Melbourne, Melbourne, Victoria, Australia
Centre for Research in Music and Health, Norwegian Academy of Music, Oslo, Norway
Faculty of Fine Arts and Music, The University of Melbourne, Melbourne, Victoria, Australia
Austin Health, Heidelberg, Victoria, Australia
Hochschule für angewandte Wissenschaften Würzburg-Schweinfurt, Würzburg, Germany
Cambridge Institute for Music Therapy Research, Anglia Ruskin University, Cambridge, UK
Issue Date: 19-Nov-2019
metadata.dc.date: 2019-11-19
Publication information: BMJ Open 2019; 9(11): e031332
Abstract: Pharmacological interventions to address behavioural and psychological symptoms of dementia (BPSD) can have undesirable side effects, therefore non-pharmacological approaches to managing symptoms may be preferable. Past studies show that music therapy can reduce BPSD, and other studies have explored how formal caregivers use music in their caring roles. However, no randomised study has examined the effects on BPSD of music interventions delivered by informal caregivers (CGs) in the home setting. Our project aims to address the need for improved informal care by training cohabiting family CGs to implement music interventions that target BPSD, and the quality of life (QoL) and well-being of people with dementia (PwD) and CGs. A large international three-arm parallel-group randomised controlled trial will recruit a sample of 495 dyads from Australia, Germany, UK, Poland and Norway. Dyads will be randomised equally to standard care (SC), a home-based music programme plus SC, or a home-based reading programme plus SC for 12 weeks. The primary outcome is BPSD of PwD (measured using the Neuropsychiatric Inventory-Questionnaire). Secondary outcomes will examine relationship quality between CG and PwD, depression, resilience, competence, QoL for CG and QoL for PwD. Outcomes will be collected at baseline, at the end of the 12-week intervention and at 6 months post randomisation. Resource Utilisation in Dementia will be used to collect economic data across the life of the intervention and at 6-month follow-up. We hypothesise that the music programme plus SC will generate better results than SC alone (primary comparison) and the reading programme plus SC (secondary comparison). Ethical approval has been obtained for all countries. Results will be presented at national and international conferences and published in scientific journals and disseminated to consumer and caregiver representatives and the community. ACTRN12618001799246p; NCT03907748.
URI: http://ahro.austin.org.au/austinjspui/handle/1/22180
DOI: 10.1136/bmjopen-2019-031332
ORCID: 0000-0002-3623-033X
0000-0002-9851-7133
PubMed URL: 31748300
Type: Journal Article
Subjects: behavioural and psychological symptoms of dementia
caregivers
dementia
home-based interventions
music therapy
randomised controlled trial
Appears in Collections:Journal articles

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