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Title: A Framework to support Quality of Care for patients with Chronic Intestinal Failure requiring Home Parenteral Nutrition.
Austin Authors: Osland, Emma J;McGrath, Kathleen H;Ali, Azmat;Carey, Sharon;Daniells, Suzie;Angstmann, Katerina;Bines, Julie;Asrani, Varsha;Watson, Caitlin;Jones, Lynn;De Cruz, Peter P 
Affiliation: Department of Surgery, School of Medicine, University of Auckland, Auckland, New Zealand
Department of Nutrition and Dietetics, Princess Alexandra Hospital, Woolloongabba, Australia
Department of Nutrition and Dietetics, Royal Brisbane and Women's Hospital, Herston, Australia
School of Human Movements and Nutrition Science, University of Queensland, Brisbane, Australia
Department of Gastroenterology and Nutrition, Birmingham Children's Hospital, Birmingham, United Kingdom
Department of Nutrition and Dietetics, Auckland City Hospital, Auckland, New Zealand
Department of Gastroenterology, Austin Health, Heidelberg, Victoria, Australia
Department of Medicine, Austin Health, The University of Melbourne, Heidelberg, Victoria, Australia
Intestinal Failure Service, Royal Prince Alfred Hospital, Sydney, Australia
Intestinal Failure and Clinical Nutrition Research Group, Murdoch Children's Research Institute, Melbourne, Australia
Department of Paediatrics, University of Melbourne, Australia
Department of Gastroenterology and Clinical Nutrition, Royal Children's Hospital, Melbourne, Australia
Division Surgery, Royal North Shore Hospital, St Leonard, Australia
Department of Nutrition and Dietetics, Prince of Wales Hospital, Randwick, Australia
Department of Nutrition and Dietetics, Royal Prince Alfred Hospital, Sydney, Australia
School of Life & Environmental Sciences, The University of Sydney, Sydney, Australia
Department of Nutrition and Dietetics, Monash Children's Hospital, Melbourne
Issue Date: 23-Aug-2019 2019-08-23
Publication information: Journal of Gastroenterology and Hepatology 2020; 35(4): 567-576
Abstract: Chronic intestinal failure requiring home parenteral nutrition (HPN) is a disabling condition that is best facilitated by a multidisciplinary approach to care. Variation in care has been identified as a key barrier to achieving quality of care for patients on HPN and requires appropriate strategies to help standardize management. The Australasian Society for Parenteral and Enteral Nutrition (AuSPEN) assembled a multidisciplinary working group of 15 clinicians to develop a quality framework to assist with the standardization of HPN care in Australia. Obstacles to quality care specific to Australia were identified by consensus. Drafts of the framework documents were based on the available literature and refined by two Delphi rounds with the clinician work group, followed by a further two involving HPN consumers. The Oxford Centre for Evidence-Based Medicine Levels of Evidence were used to assess the strength of evidence underpinning each concept within the framework documents. Quality Indicators, Standards of Care, and Position Statements have been developed to progress the delivery of quality care to HPN patients. The quality framework proposed by AuSPEN is intended to provide a practical structure for clinical and organizational aspects of HPN service delivery to reduce variation in care and improve quality of care and represents the initial step towards development of a national model of care for HPN patients in Australia. While developed for implementation in Australia, the evidence-based framework also has relevance to the international HPN community.
DOI: 10.1111/jgh.14841
ORCID: 0000-0003-1144-1787
PubMed URL: 31441085
Type: Journal Article
Subjects: Intestinal Diseases
Parenteral Nutrition, Home
Quality of Health Care
Standard of Care
Appears in Collections:Journal articles

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