Please use this identifier to cite or link to this item:
Title: Concordance between self-reported completion of advance care planning documentation and availability of documentation in Australian health and residential aged care services.
Austin Authors: Buck, Kimberly ;Detering, Karen M ;Pollard, Annabel;Sellars, Marcus ;Ruseckaite, Rasa;Kelly, Helana;White, Ben;Sinclair, Craig;Nolte, Linda 
Affiliation: Faculty of Medicine, Dentistry and Health Sciences, University of Melbourne, Parkville, Australia
Australian Centre for Health Research Law, Faculty of Law, Queensland University of Technology, Brisbane, Australia
Department of Epidemiology and Preventative Medicine, Monash University, Melbourne, Australia
Advance Care Planning Australia, Austin Health, Heidelberg, Victoria, Australia
Centre of Excellence in Population Ageing Research, University of New South Wales, Sydney, Australia
Issue Date: Aug-2019 2019-04-25
Publication information: Journal of Pain and Symptom Management 2019; 58(2): 264-274
Abstract: Advance care planning (ACP) documentation needs to be available at the point of care to guide and inform medical treatment decision-making. To examine concordance between self-reported completion of ACP documentation and self-reported storage of the documentation at the person's current point of care with the availability of the documentation in that person's health record. A national multi-centre audit of health records and a self-report survey of eligible audit participants in 51 Australian health and residential aged care services. The audit assessed availability of ACP documentation in the health record while the survey assessed self-reported completion and storage of the ACP documentation at the person's current place of care. To ascertain concordance, survey and audit data were cross-tabulated and concordance rates and kappa statistics were calculated overall, and by healthcare sector and ACP documentation type. The audit included 2285 people, of whom 1082 were eligible for the survey. Of 507 who completed the survey (response rate = 47%), 272 (54%) reported completing ACP documentation, of whom 130 (48%) had documentation identified in the audit. Conversely, 39 of 235 people (17%) who reported not completing ACP documentation had documentation identified (concordance rate = 64%; κ = 0.303, p < .001). The concordance rate increased to 79% when self-reported storage of ACP documentation at the person's current point of care was compared with the existence of the document in their health record (κ = 0.510, p < .001). Concordance varied by health care setting and type of ACP documentation. Discrepancies exist between self-reported completion of ACP documentation and the presence of these documents in the health records of older adults, representing a significant patient safety issue. Public education campaigns and improvements to systems for document storage and accessibility are required to support person-centred medical and end-of-life care.
DOI: 10.1016/j.jpainsymman.2019.04.026
Journal: Journal of Pain and Symptom Management
PubMed URL: 31029805
Type: Journal Article
Subjects: Advance care directive
advance care planning
documentation accessibility
Appears in Collections:Journal articles

Show full item record

Page view(s)

checked on Jan 27, 2023

Google ScholarTM


Items in AHRO are protected by copyright, with all rights reserved, unless otherwise indicated.