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Title: How can stroke care be improved for younger service users? A qualitative study on the unmet needs of younger adults in inpatient and outpatient stroke care in Australia.
Austin Authors: Shipley, Jessica;Luker, Julie;Thijs, Vincent N ;Bernhardt, Julie
Affiliation: Sansom Institute for Health Research, University of South Australia, Adelaide, Australia
Royal Melbourne Hospital, Melbourne, Australia
Stroke Division, Florey Institute of Neuroscience and Mental Health, Melbourne, Australia
Department of Neurology, Austin Health, Heidelberg, Victoria, Australia
Issue Date: Jun-2020 2019-01-07
Publication information: Disability and Rehabilitation 2020; 42(12): 1697-1704
Abstract: The incidence of young stroke is increasing worldwide. However, young adults are inadequately supported in their recovery by a system of stroke care in which the older patient is the majority consumer. To examine the unmet needs of younger stroke survivors in inpatient and outpatient healthcare settings and identify opportunities for improved service delivery. In-depth semi-structured interviews were undertaken with 19 participants aged 18-55 at the time of their first-ever stroke and inductively analysed using a rigorous qualitative descriptive approach. Many unmet care needs were identified within three emergent themes: inadequately addressed psycho-emotional and cognitive needs after young stroke; isolation from lack of information and structured support; and failure to deliver age-relevant patient-centred care. These themes were further divided into sub-themes and the sub-themes were named in a manner to signpost the way forward for young stroke care. This study provides new insights into the experience of inpatient and outpatient stroke care by younger stroke survivors and outlines possible improvements for clinical practice. Future research should evaluate the effect of targeted strategies to support younger adults after stroke. Implications for rehabilitation Post-stroke rehabilitation might be improved by providing more support for the non-physical effects of stroke (e.g., psycho-emotional support, cognitive rehabilitation). Younger stroke survivors may also benefit from a long-term community care plan and longer-term rehabilitation. Patient-centered rehabilitation and education about self-management interventions appear to be important areas for further development. Future research is required to evaluate the effect of targeted strategies to support younger stroke survivors, as well as identify the needs of younger adults with post-stroke communication impairment.
DOI: 10.1080/09638288.2018.1534278
ORCID: 0000-0003-2988-7525
PubMed URL: 30616439
Type: Journal Article
Subjects: Stroke
long-term needs
needs assessment
qualitative research
Stroke care
young adult
Appears in Collections:Journal articles

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