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Title: Do Australian adolescents' and young adults' experiences of cancer care influence their quality of life?
Austin Authors: Skaczkowski, Gemma ;White, Victoria;Thompson, Kate;Bibby, Helen;Coory, Michael;Pinkerton, Ross;Orme, Lisa M;Conyers, Rachel;Phillips, Marianne B;Osborn, Michael;Harrup, Rosemary;Anazodo, Antoinette
Affiliation: Centre for Behavioural Research in Cancer, Cancer Council Victoria, Melbourne, Victoria, Australia
School of Psychology and Public Health, La Trobe University, Melbourne, Victoria, Australia
Olivia Newton-John Cancer Wellness & Research Centre, Austin Health, Heidelberg, Victoria, Australia
School of Psychology, Deakin University, Melbourne, Victoria, Australia
Peter MacCallum Cancer Centre, Melbourne, Victoria, Australia
Faculty of Medicine, Dentistry and Health Sciences, University of Melbourne, Melbourne, Victoria, Australia
Children's Health Queensland Hospital and Health Service, South Brisbane, Queensland, Australia
Children's Cancer Centre, The Royal Children's Hospital, Melbourne, Victoria, Australia
Murdoch Children's Research Institute, Parkville, Victoria, Australia
Princess Margaret Hospital for Children, Perth, Western Australia, Australia
Royal Adelaide Hospital, Adelaide, South Australia, Australia
Royal Hobart Hospital, Hobart, Tasmania, Australia
Kids Cancer Centre, Sydney Children's Hospital, Randwick, New South Wales, Australia
Nelune Comprehensive Cancer Centre, Prince of Wales Hospital, Randwick, New South Wales, Australia
School of Women's and Children's Health, University of New South Wales, Sydney, Australia
Issue Date: Mar-2018 2018-01-30
Publication information: Psycho-oncology 2018; 27(3): 990-997
Abstract: To examine the relationship between the cancer care experiences of adolescents and young adults (AYAs) and their quality of life. Two hundred and nine AYAs completed a cross-sectional, self-report survey distributed through the population-based cancer registries in 2 Australian states (New South Wales and Victoria). Eligible AYAs were 15 to 24 years old when diagnosed with any cancer (excluding early-stage melanoma) and were 3 to 24 months post-diagnosis. Questions examined whether particular care experiences occurred for the patient at different points in the cancer care pathway, including diagnosis, treatment, inpatient care, and at the end of treatment. Quality of life was assessed using the Functional Assessment of Cancer Therapy-General scale. Positive experiences of care at diagnosis, during treatment, during inpatient stays, and when finishing treatment were associated with higher functional, emotional, and social well-being. However, these associations generally became nonsignificant when communication and support experiences were included in the model. Inpatient experiences positively influenced emotional well-being over and above the effect of communication and support experiences. The results suggest that, for most AYAs' quality of life outcomes, positive experiences of age-appropriate communication and emotional support may underpin the effect of positive experiences of care throughout the cancer care pathway. The results support the need for communication and support tailored to an AYA audience, as recognised by recent Australian and international guidelines on the care of AYAs with cancer.
DOI: 10.1002/pon.4625
ORCID: 0000-0003-0715-3563
PubMed URL: 29278663
Type: Journal Article
Subjects: Australia
adolescents and young adults
Experiences of care
Quality of life
Appears in Collections:Journal articles

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