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Title: Facilitators and barriers to international collaboration in spinal cord injury: results from a survey of clinicians and researchers
Austin Authors: Noonan, Vanessa K;Chan, Elaine;Bassett-Spiers, Kent;Berlowitz, David J ;Biering-Sørensen, Fin;Charlifue, Susan;Graco, Marnie ;Hayes, Keith C;Horsewell, Jane;Joshi, Phalgun;Markelis, Debora;Smith, Verna;Waheed, Zeina;Brown, Douglas J
Affiliation: Rick Hansen Institute, Vancouver, Canada
Ontario Neurotrauma Foundation, Toronto, Canada
Institute for Breathing and Sleep, Heidelberg, Victoria, Australia
Spinal Research Institute, Kew, Victoria, Australia
Clinic for Spinal Cord Injuries, Copenhagen, Denmark
Craig Hospital, Englewood, Colorado, United States
European Spinal Cord Injury Federation, Copenhagen, Denmark
WorkSafe Victoria, Melbourne, Victoria, Australia
Institute for Safety, Compensation and Recovery Research, Melbourne, Victoria, Australia
Victoria University of Wellington, Wellington, New Zealand
Issue Date: 2018
Date: 2017-07-20
Publication information: Journal of Neurotrauma 2018; 35(3): 478-485
Abstract: International collaboration in spinal cord injury (SCI) clinical research is necessary to overcome the challenges often encountered by clinicians and researchers including participant recruitment, high cost and the need for highly specialized expertise. However, international collaboration poses its own obstacles. The objective of this study was to conduct an international online survey to assess barriers and facilitators to international SCI clinical research, potential initiatives to facilitate future collaborations and the use of SCI-specific data sets and standards. Results were analyzed using descriptive statistics. 213 out of 364 total respondents fully completed the survey with the majority of these participants based in North America (38%), Asia (22%), Europe (18%) and Oceania (16%). Over half had >10 years of experience in SCI research or clinical practice (57%) and 60% had previous experience with international collaborations. Funding was identified as a top barrier (82%), facilitator (93%) and proposed future initiative (97%). Communication and technology were also identified as strong facilitators and proposed future initiatives. The International Standards for Neurological Classification of SCI were used by 69%, the International Standards to document remaining Autonomic Function after SCI by 13%, and the International SCI Data Sets by 45% of participants. As the need for international collaborations in SCI research increases, it is important to identify how clinicians and researchers can be supported by SCI consumer and professional organizations, funders and networks. Furthermore, unique solutions to overcome modifiable barriers and creation of new facilitators are also needed.
DOI: 10.1089/neu.2017.5036
ORCID: 0000-0003-2543-8722
Journal: Journal of Neurotrauma
PubMed URL: 28728503
Type: Journal Article
Subjects: Clinical trial
Traumatic spinal cord injury
Spinal cord injury
Appears in Collections:Journal articles

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