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dc.contributor.authorNoonan, Vanessa K-
dc.contributor.authorChan, Elaine-
dc.contributor.authorBassett-Spiers, Kent-
dc.contributor.authorBerlowitz, David J-
dc.contributor.authorBiering-Sørensen, Fin-
dc.contributor.authorCharlifue, Susan-
dc.contributor.authorGraco, Marnie-
dc.contributor.authorHayes, Keith C-
dc.contributor.authorHorsewell, Jane-
dc.contributor.authorJoshi, Phalgun-
dc.contributor.authorMarkelis, Debora-
dc.contributor.authorSmith, Verna-
dc.contributor.authorWaheed, Zeina-
dc.contributor.authorBrown, Douglas J-
dc.identifier.citationJournal of Neurotrauma 2018; 35(3): 478-485en_US
dc.description.abstractInternational collaboration in spinal cord injury (SCI) clinical research is necessary to overcome the challenges often encountered by clinicians and researchers including participant recruitment, high cost and the need for highly specialized expertise. However, international collaboration poses its own obstacles. The objective of this study was to conduct an international online survey to assess barriers and facilitators to international SCI clinical research, potential initiatives to facilitate future collaborations and the use of SCI-specific data sets and standards. Results were analyzed using descriptive statistics. 213 out of 364 total respondents fully completed the survey with the majority of these participants based in North America (38%), Asia (22%), Europe (18%) and Oceania (16%). Over half had >10 years of experience in SCI research or clinical practice (57%) and 60% had previous experience with international collaborations. Funding was identified as a top barrier (82%), facilitator (93%) and proposed future initiative (97%). Communication and technology were also identified as strong facilitators and proposed future initiatives. The International Standards for Neurological Classification of SCI were used by 69%, the International Standards to document remaining Autonomic Function after SCI by 13%, and the International SCI Data Sets by 45% of participants. As the need for international collaborations in SCI research increases, it is important to identify how clinicians and researchers can be supported by SCI consumer and professional organizations, funders and networks. Furthermore, unique solutions to overcome modifiable barriers and creation of new facilitators are also needed.en_US
dc.subjectClinical trialen_US
dc.subjectTraumatic spinal cord injuryen_US
dc.subjectSpinal cord injuryen_US
dc.titleFacilitators and barriers to international collaboration in spinal cord injury: results from a survey of clinicians and researchersen_US
dc.typeJournal Articleen_US
dc.identifier.journaltitleJournal of Neurotraumaen_US
dc.identifier.affiliationRick Hansen Institute, Vancouver, Canadaen_US
dc.identifier.affiliationOntario Neurotrauma Foundation, Toronto, Canadaen_US
dc.identifier.affiliationInstitute for Breathing and Sleep, Heidelberg, Victoria, Australiaen_US
dc.identifier.affiliationSpinal Research Institute, Kew, Victoria, Australiaen_US
dc.identifier.affiliationClinic for Spinal Cord Injuries, Copenhagen, Denmarken_US
dc.identifier.affiliationCraig Hospital, Englewood, Colorado, United Statesen_US
dc.identifier.affiliationEuropean Spinal Cord Injury Federation, Copenhagen, Denmarken_US
dc.identifier.affiliationWorkSafe Victoria, Melbourne, Victoria, Australiaen_US
dc.identifier.affiliationInstitute for Safety, Compensation and Recovery Research, Melbourne, Victoria, Australiaen_US
dc.identifier.affiliationVictoria University of Wellington, Wellington, New Zealanden_US
dc.type.austinJournal Articleen_US, David J
item.fulltextNo Fulltext-
item.openairetypeJournal Article- for Breathing and Sleep- Analytics Research and Evaluation (DARE) Centre- for Breathing and Sleep-
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