Please use this identifier to cite or link to this item: https://ahro.austin.org.au/austinjspui/handle/1/30975
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dc.contributor.authorTanaka, Yoshiya-
dc.contributor.authorBarrett, Claire-
dc.contributor.authorHirano, Yuji-
dc.contributor.authorIkeda, Kei-
dc.contributor.authorPaizis, Kathy-
dc.contributor.authorSameshima, Azusa-
dc.contributor.authorMountian, Irina-
dc.contributor.authorWong, Priscilla C-
dc.date2022-
dc.date.accessioned2022-10-07T05:29:56Z-
dc.date.available2022-10-07T05:29:56Z-
dc.date.issued2023-04-
dc.identifier.citationRheumatology International 2023; 43(4)en
dc.identifier.urihttps://ahro.austin.org.au/austinjspui/handle/1/30975-
dc.description.abstractPerspectives of women aged 18-45 years with chronic rheumatic diseases (CRD), and clinicians, in the Asia-Pacific (APAC) region are reported. Online surveys were completed by women, pregnant in the past 2-5 years, with moderate to severe rheumatoid arthritis (RA), psoriatic arthritis (PsA), axial spondyloarthritis (axSpA), and rheumatologists, obstetricians, orthopaedic surgeons who medically manage CRDs. Among 210 (RA 122, PsA 48, axSpA 40) patients, 52% (n = 109/210) delayed their decision to have children, most commonly due to concerns of passing on disease to offspring. 33% (n = 70/210) discussed family planning with a healthcare professional at diagnosis. Patients most often initiated discussions. 94% (n = 193/205) stopped treatment around pregnancy due to fear of fetal harm. 66% (n = 139/210) of patients felt they did not receive all relevant information on the impact of CRDs and treatment on pregnancy. Among 335 clinicians who participated, 82% (n = 143/174) of rheumatologists, 86% (n = 72/84) of obstetricians and 43% (n = 33/77) of orthopaedic surgeons agreed good disease control during pregnancy was their primary goal. 69% (n = 120/174) of rheumatologists were 'very comfortable' with prescribing tumour necrosis factor inhibitors (TNFi) for women aged 18-45 years. Comfort levels generally decreased with the onset of family planning. More obstetricians and orthopaedic surgeons supported avoiding TNFi during pregnancy than rheumatologists (40% [n = 34/84]/38% [n = 29/77] versus 16% [n = 28/174]). Access to more TNFi safety data during pregnancy was considered paramount for increasing clinician comfort. Patients and physicians need current information and multidisciplinary discussions for improved management of CRD in women in APAC.en
dc.language.isoeng-
dc.subjectChronic rheumatic diseasesen
dc.subjectFamily planningen
dc.subjectPatientsen
dc.subjectPregnancyen
dc.subjectSurveyen
dc.subjectTumour necrosis factor inhibitorsen
dc.titleManagement of chronic rheumatic diseases in women 18-45 years of age in Asia Pacific: insights from patient and clinician surveys.en
dc.typeJournal Articleen
dc.identifier.journaltitleRheumatology internationalen
dc.identifier.affiliationWestern Health, St Albans, Australiaen
dc.identifier.affiliationRedcliffe Hospital, Redcliffe and University of Queensland, St Lucia, Australiaen
dc.identifier.affiliationUniversity of Occupational and Environmental Health, Japan, Kitakyushu, Japan. tanaka@med.uoeh-u.ac.jp..en
dc.identifier.affiliationToyohashi Municipal Hospital, Toyohashi, Japan..en
dc.identifier.affiliationChiba University Hospital, Chiba, Japan..en
dc.identifier.affiliationUniversity of Toyama, Toyama, Japan..en
dc.identifier.affiliationUCB Pharma, Brussels, Belgium..en
dc.identifier.affiliationThe Chinese University of Hong Kong, Hong Kong, HK, Hong Kong..en
dc.identifier.affiliationNephrologyen
dc.identifier.doi10.1007/s00296-022-05206-0en
dc.type.contentTexten
dc.identifier.orcidhttp://orcid.org/0000-0002-0807-7139en
dc.identifier.orcidhttp://orcid.org/0000-0002-0362-0382en
dc.identifier.orcidhttp://orcid.org/0000-0002-0422-8139en
dc.identifier.orcidhttp://orcid.org/0000-0003-0574-9611en
dc.identifier.orcidhttp://orcid.org/0000-0002-3580-1970en
dc.identifier.orcidhttp://orcid.org/0000-0002-8087-6066en
dc.identifier.orcidhttp://orcid.org/0000-0002-1510-6428en
dc.identifier.orcidhttp://orcid.org/0000-0001-8713-9539en
dc.identifier.pubmedid36163594-
local.name.researcherPaizis, Kathy
item.openairecristypehttp://purl.org/coar/resource_type/c_18cf-
item.cerifentitytypePublications-
item.fulltextNo Fulltext-
item.grantfulltextnone-
item.languageiso639-1en-
item.openairetypeJournal Article-
crisitem.author.deptNephrology-
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