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Title: | Australian arm of the International Spinal Cord Injury (Aus-InSCI) Community Survey: 3. Drivers of quality of life in people with spinal cord injury. | Austin Authors: | Kifley, Annette;Arora, Mohit;Nunn, Andrew K ;Marshall, Ruth;Geraghty, Timothy;Weber, Gerard;Urquhart, Sue;Craig, Ashley;Cameron, Ian D;Middleton, James W | Affiliation: | Spinal Injury Unit, Royal Rehab, Ryde, NSW, Australia.. Queensland Spinal Cord Injury Service, Princess Alexandra Hospital, Brisbane, QLD, Australia.. Victorian Spinal Cord Service South Australian Spinal Cord Injury Service, Central Adelaide Local Health Network, Adelaide, SA, Australia.. Faculty of Health and Medical Sciences, University of Adelaide, Adelaide, SA, Australia.. Queensland Spinal Cord Injuries Service, Division of Rehabilitation, Princess Alexandra Hospital, Brisbane, QLD, Australia.. The Hopkins Centre, Griffith University, Brisbane, QLD, Australia.. John Walsh Centre for Rehabilitation Research, Kolling Institute, Northern Sydney Local Health District, St Leonards, NSW, Australia.. Sydney Medical School-Northern, Faculty of Medicine and Health, The University of Sydney, Sydney, NSW, Australia.. State Spinal Cord Injury Service, Agency for Clinical Innovation, St Leonards, NSW, Australia.. Spinal Outreach Service, Royal Rehab, Ryde, NSW, Australia.. |
Issue Date: | 2023 | Date: | 2022 | Publication information: | Spinal Cord 2023; 61(3) | Abstract: | Cross-sectional population-based survey for the Australian cohort of the International Spinal Cord Injury (InSCI) Community Survey. To differentiate subgroups of people with spinal cord injury (SCI) who self-report good and poor overall quality of life (QoL) using domains of the International Classification of Functioning (ICF), and to evaluate how these factors contribute to QoL when considered together, while controlling confounders. Australian survey data from four state-wide SCI services, one government insurance agency, and three not-for-profit consumer organisations. Explanatory factors for QoL were compared between participants reporting poor vs. good QoL. Path models estimated total, direct and mediated contributions from each explanatory factor to QoL ratings after accounting for confounders. Most participants (62%) reported good or very good QoL, 12% reported poor or very poor QoL. When explanatory factors were considered together, the strongest total effects on QoL involved social integration (+0.36 SDs), subjective social position (+0.29), secondary health condition burden (-0.28), activity/participation problem burden (-0.26), day-to-day assistance (-0.26), mental health (+0.18), pain (-0.16), self-efficacy (+0.15), vitality (+0.14) and environmental barriers (-0.11). Effects of social integration, mental health, vitality, self-efficacy, pain and activity/participation problems were partly or wholly direct. Opportunities to improve QoL in people with SCI exist at every level of the health system. Virtually all aspects of the ICF framework make a substantive difference to QoL outcomes. Social and psychological factors and ability to complete desired activities have key direct effects and influence effects of secondary health condition burden and environmental barriers. | URI: | https://ahro.austin.org.au/austinjspui/handle/1/30829 | DOI: | 10.1038/s41393-022-00845-3 | ORCID: | http://orcid.org/0000-0002-3764-4905 http://orcid.org/0000-0003-1024-3682 http://orcid.org/0000-0001-7647-7604 http://orcid.org/0000-0002-2777-8619 http://orcid.org/0000-0002-0222-9410 |
Journal: | Spinal Cord | PubMed URL: | 35995988 | PubMed URL: | https://pubmed.ncbi.nlm.nih.gov/35995988/ | Type: | Journal Article |
Appears in Collections: | Journal articles |
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