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|Title:||Identity disclosure between donor families and organ transplant recipients: an integrative review of the international literature.||Austin Authors:||Cignarella, Anthony;Ranse, Kristen;Hewitt, Jayne;Opdam, Helen I ;Romero, Lorena;Marshall, Andrea||Affiliation:||The Alfred Hospital, Alfred Health, Melbourne, Victoria, Australia..
The Alfred Hospital, Alfred Health, Nursing Education, Melbourne, Victoria, Australia..
Nursing and Midwifery Education and Research Unit, Gold Coast University Hospital, Gold Coast, Queensland, Australia..
School of Nursing and Midwifery, Griffith University, Gold Coast, Queensland, Australia..
Australian Organ and Tissue Authority, Canberra, NSW, Australia..
Griffith Law School, Griffith University, Gold Coast, Queensland, Australia..
Intensive Care Unit, Princess Alexandra Hospital, Brisbane, Queensland, Australia..
The Alfred Hospital, Alfred Health, Intensive Care Unit, Melbourne, Victoria, Australia..
|Issue Date:||11-Mar-2022||Date:||2022||Publication information:||Psychology, health & medicine 2022; online first: 11 March||Abstract:||Anonymity of deceased organ donation is a legal requirement in many international jurisdictions where legislation prohibits health professionals from disclosing identifiable information about donors, recipients or their families. Written correspondence between donor families and transplant recipients that is coordinated by healthcare professionals must remain anonymous. Internationally, an increasing number of donor families and transplant recipients have advocated for law reform and policy amendment to enable the exchange of identifiable written correspondence and/or face-to-face meetings. This paper aims to synthesise and critically evaluate published, peer-reviewed literature on the perceptions, benefits and challenges of identifiable communication or anonymity between donor families and organ transplant recipients in the international context. Analysis of the findings revealed two major themes: (1) views held by donor families, transplant recipients and healthcare professionals towards identity disclosure in the context of organ donation are diverse across and within groups (2) there are benefits and burdens associated with connecting donor families and transplant recipients through written correspondence. Less is known about the impact of face-to-face meetings between donor families and transplant recipients. However, what is known is that for some donor families, meeting with the transplant recipient(s) may provide a range of positive emotions.||URI:||https://ahro.austin.org.au/austinjspui/handle/1/28983||DOI:||10.1080/13548506.2022.2050272||ORCID:||0000-0001-6637-8901
|Journal:||Psychology, health & medicine||PubMed URL:||35272546||PubMed URL:||https://pubmed.ncbi.nlm.nih.gov/35272546/||Type:||Journal Article||Subjects:||Donor family
|Appears in Collections:||Journal articles|
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