Please use this identifier to cite or link to this item: https://ahro.austin.org.au/austinjspui/handle/1/22888
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dc.contributor.authorTikellis, Gabriella-
dc.contributor.authorLee, Joanna Y T-
dc.contributor.authorCorte, Tamera J-
dc.contributor.authorMaloney, Jamie-
dc.contributor.authorBartlett, Michael-
dc.contributor.authorCrawford, Tonia-
dc.contributor.authorGlaspole, Ian N-
dc.contributor.authorGoh, Nicole S L-
dc.contributor.authorHerrmann, Kelcie-
dc.contributor.authorHey-Cunningham, Alison J-
dc.contributor.authorKeir, Greg-
dc.contributor.authorKhor, Yet H-
dc.contributor.authorPrice, John-
dc.contributor.authorSandford, Debra G-
dc.contributor.authorSpencer, Lissa-
dc.contributor.authorTeoh, Alan-
dc.contributor.authorWalsh, Jennifer-
dc.contributor.authorWebster, Susanne-
dc.contributor.authorHolland, Anne E-
dc.date2020-03-23-
dc.date.accessioned2020-03-31T03:15:25Z-
dc.date.available2020-03-31T03:15:25Z-
dc.date.issued2020-03-23-
dc.identifier.citationRespirology (Carlton, Vic.) 2020; online first: 23 March-
dc.identifier.urihttp://ahro.austin.org.au/austinjspui/handle/1/22888-
dc.description.abstractPeople living with pulmonary fibrosis (PF) report unmet needs for information and support. Lung Foundation Australia (LFA) have developed the Peer Connect Service to facilitate telephone support for people with PF across Australia. This project documented the experiences of participants and the resources required to support the service. Consenting participants took part in semi-structured interviews by telephone. Primary peers (peers who agreed to initiate contact) and secondary peers (eligible patients who sought a peer match) were interviewed. Thematic analysis was undertaken by two independent researchers. Data were collected on the number of matches and contacts required to establish each match. Interviews were conducted with 32 participants (16 primary peers, 15 secondary peers and 1 who was both), aged from 53 to 89 years with 56% being male. Major themes included the value of shared experiences, providing mutual support and the importance of shared personal characteristics (e.g. gender and hobbies) in allowing information and emotional support needs to be met. Participants saw face-to-face contact with peers as highly desirable whilst acknowledging the practical difficulties. Primary peers were cognizant that their role was not to provide medical advice but to listen and share experiences. In the 12-month period, 60 peer matches were made, each match requiring a minimum of seven staff contacts. The Peer Connect Service provides a unique opportunity for people with PF to share experiences and offer mutual support. This telephone matching model may be useful in providing peer support for individuals with rare diseases who are geographically dispersed.-
dc.language.isoeng-
dc.subjectevaluation-
dc.subjectlung diseases-
dc.subjectpulmonary fibrosis-
dc.subjectqualitative research-
dc.subjectservice delivery-
dc.titlePeer Connect Service for people with pulmonary fibrosis in Australia: Participants' experiences and process evaluation.-
dc.typeJournal Article-
dc.identifier.journaltitleRespirology (Carlton, Vic.)-
dc.identifier.affiliationDepartment of Physiotherapy, Alfred Health, Melbourne, VIC, Australiaen
dc.identifier.affiliationDepartment of Physiotherapy, La Trobe University, Melbourne, VIC, Australiaen
dc.identifier.affiliationInstitute for Respiratory Health, Perth, WA, Australiaen
dc.identifier.affiliationDepartment of Respiratory Medicine, Princess Alexandra Hospital, Brisbane, QLD, Australiaen
dc.identifier.affiliationLung Foundation Australia, Brisbane, QLD, Australiaen
dc.identifier.affiliationDepartment of Respiratory and Sleep Medicine, Alfred Health, Melbourne, VIC, Australiaen
dc.identifier.affiliationDepartment of Medicine, The University of Melbourne, Melbourne, VIC, Australiaen
dc.identifier.affiliationDiscipline of Psychiatry, School of Medicine, The University of Adelaide, Adelaide, SA, Australiaen
dc.identifier.affiliationFaculty of Health Sciences, The University of Sydney, Sydney, NSW, Australiaen
dc.identifier.affiliationDepartment of Respiratory Medicine, Royal Prince Alfred Hospital, Sydney, NSW, Australiaen
dc.identifier.affiliationDepartment of Allergy, Immunology and Respiratory Medicine, Monash University, Melbourne, VIC, Australiaen
dc.identifier.affiliationNHMRC Centre of Research Excellence in Pulmonary Fibrosis, Australiaen
dc.identifier.affiliationThe University of Sydney Central Clinical School, Sydney, NSW, Australiaen
dc.identifier.affiliationPhysiotherapy Department, Royal Prince Alfred Hospital, Sydney, NSW, Australiaen
dc.identifier.affiliationDepartment of Thoracic Medicine, Royal Adelaide Hospital, Adelaide, SA, Australiaen
dc.identifier.affiliationDepartment of Respiratory and Sleep Medicine, Austin Health, Heidelberg, Victoria, Australiaen
dc.identifier.affiliationInstitute for Breathing and Sleep, Austin Health, Heidelberg, Victoria, Australiaen
dc.identifier.doi10.1111/resp.13807-
dc.identifier.orcid0000-0002-5154-6658-
dc.identifier.orcid0000-0002-5118-2890-
dc.identifier.orcid0000-0003-2065-4346-
dc.identifier.orcid0000-0001-9979-8726-
dc.identifier.orcid0000-0002-5434-9342-
dc.identifier.orcid0000-0002-2358-0736-
dc.identifier.orcid0000-0003-2061-845X-
dc.identifier.pubmedid32207225-
dc.type.austinJournal Article-
Appears in Collections:Journal articles
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