Please use this identifier to cite or link to this item: https://ahro.austin.org.au/austinjspui/handle/1/22693
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dc.contributor.authorPick, Susannah-
dc.contributor.authorAnderson, David G-
dc.contributor.authorAsadi-Pooya, Ali A-
dc.contributor.authorAybek, Selma-
dc.contributor.authorBaslet, Gaston-
dc.contributor.authorBloem, Bastiaan R-
dc.contributor.authorBradley-Westguard, Abigail-
dc.contributor.authorBrown, Richard J-
dc.contributor.authorCarson, Alan J-
dc.contributor.authorChalder, Trudie-
dc.contributor.authorDamianova, Maria-
dc.contributor.authorDavid, Anthony S-
dc.contributor.authorEdwards, Mark J-
dc.contributor.authorEpstein, Steven A-
dc.contributor.authorEspay, Alberto J-
dc.contributor.authorGarcin, Béatrice-
dc.contributor.authorGoldstein, Laura H-
dc.contributor.authorHallett, Mark-
dc.contributor.authorJankovic, Joseph-
dc.contributor.authorJoyce, Eileen M-
dc.contributor.authorKanaan, Richard A A-
dc.contributor.authorKeynejad, Roxanne C-
dc.contributor.authorKozlowska, Kasia-
dc.contributor.authorLaFaver, Kathrin-
dc.contributor.authorLaFrance, W Curt-
dc.contributor.authorLang, Anthony E-
dc.contributor.authorLehn, Alex-
dc.contributor.authorLidstone, Sarah-
dc.contributor.authorMaurer, Carine W-
dc.contributor.authorMildon, Bridget-
dc.contributor.authorMorgante, Francesca-
dc.contributor.authorMyers, Lorna-
dc.contributor.authorNicholson, Clare-
dc.contributor.authorNielsen, Glenn-
dc.contributor.authorPerez, David L-
dc.contributor.authorPopkirov, Stoyan-
dc.contributor.authorReuber, Markus-
dc.contributor.authorRommelfanger, Karen S-
dc.contributor.authorSchwingenshuh, Petra-
dc.contributor.authorSerranova, Tereza-
dc.contributor.authorShotbolt, Paul-
dc.contributor.authorStebbins, Glenn T-
dc.contributor.authorStone, Jon-
dc.contributor.authorTijssen, Marina Aj-
dc.contributor.authorTinazzi, Michele-
dc.contributor.authorNicholson, Timothy R-
dc.date2020-02-28-
dc.date.accessioned2020-03-02T03:28:01Z-
dc.date.available2020-03-02T03:28:01Z-
dc.date.issued2020-06-
dc.identifier.citationJournal of neurology, neurosurgery, and psychiatry 2020; 91(6): 638-649-
dc.identifier.urihttps://ahro.austin.org.au/austinjspui/handle/1/22693-
dc.description.abstractWe aimed to identify existing outcome measures for functional neurological disorder (FND), to inform the development of recommendations and to guide future research on FND outcomes. A systematic review was conducted to identify existing FND-specific outcome measures and the most common measurement domains and measures in previous treatment studies. Searches of Embase, MEDLINE and PsycINFO were conducted between January 1965 and June 2019. The findings were discussed during two international meetings of the FND-Core Outcome Measures group. Five FND-specific measures were identified-three clinician-rated and two patient-rated-but their measurement properties have not been rigorously evaluated. No single measure was identified for use across the range of FND symptoms in adults. Across randomised controlled trials (k=40) and observational treatment studies (k=40), outcome measures most often assessed core FND symptom change. Other domains measured commonly were additional physical and psychological symptoms, life impact (ie, quality of life, disability and general functioning) and health economics/cost-utility (eg, healthcare resource use and quality-adjusted life years). There are few well-validated FND-specific outcome measures. Thus, at present, we recommend that existing outcome measures, known to be reliable, valid and responsive in FND or closely related populations, are used to capture key outcome domains. Increased consistency in outcome measurement will facilitate comparison of treatment effects across FND symptom types and treatment modalities. Future work needs to more rigorously validate outcome measures used in this population.-
dc.language.isoeng-
dc.subjectclinical neurology-
dc.subjectconversion disorder-
dc.subjectfunctional neurological disorder-
dc.subjectmovement disorders-
dc.subjectneuropsychiatry-
dc.titleOutcome measurement in functional neurological disorder: a systematic review and recommendations.-
dc.typeJournal Article-
dc.identifier.journaltitleJournal of neurology, neurosurgery, and psychiatry-
dc.identifier.affiliationInstitute of Psychiatry, Psychology and Neuroscience, King's College London, London, UK-
dc.identifier.affiliationDepartment of Neurological Sciences, Rush University Medical Center, Chicago, Illinois, USAen
dc.identifier.affiliationInstitute of Psychiatry, Psychology and Neuroscience, King's College London, London, UKen
dc.identifier.affiliationDonald Gordon Medical Centre, University of the Witwatersrand, Johannesburg, South Africa-
dc.identifier.affiliationEpilepsy Research Center, Shiraz Medical School, Shiraz University of Medical Sciences, Shiraz, Iran, Islamic Republic ofen
dc.identifier.affiliationMater Neurosciences Centre, Brisbane, Queensland, Australiaen
dc.identifier.affiliationDiscipline of Psychiatry and Child and Adolescent Health, The Children's Hospital at Westmead, Sydney Medical School, Sydney, New South Wales, Australiaen
dc.identifier.affiliationDepartment of Psychiatry, Austin Health, The University of Melbourne, Heidelberg, Victoria, Australiaen
dc.identifier.affiliationDepartment of Neurology, Hopital Avicenne, Assistance Publique, Hôpitaux de Paris, Paris, Île-de-France, Franceen
dc.identifier.affiliationDepartment of Psychiatry, Brigham & Women's Hospital, Harvard Medical School, Boston, Massachusetts, USAen
dc.identifier.affiliationDepartment of Psychiatry, Georgetown University, Washington, District of Columbia, USAen
dc.identifier.affiliationDepartment of Neurology, Feinberg School of Medicine, Northwestern University, Chicago, Illinois, USAen
dc.identifier.affiliationDepartment of Neurology, Stony Brook University Renaissance School of Medicine, Stony Brook, New York, USAen
dc.identifier.affiliationFND Hope International, Salmon, Idaho, USAen
dc.identifier.affiliationJefferson Comprehensive Epilepsy Center, Department of Neurology, Thomas Jefferson University, Philadelphia, Pennsylvania, USAen
dc.identifier.affiliationGardner Family Center for Parkinson's Disease and Movement Disorders, Department of Neurology, University of Cincinnati, Cincinnati, Ohio, USAen
dc.identifier.affiliationHuman Motor Control Section, National Institute of Neurological Disorders and Stroke, Bethesda, Maryland, USAen
dc.identifier.affiliationParkinson's Disease Center and Movement Disorders Clinic, Department of Neurology, Baylor College of Medicine, Houston, Texas, USAen
dc.identifier.affiliationDepartments of Psychiatry and Neurology, Rhode Island Hospital, Brown Medical School, Providence, RI, USAen
dc.identifier.affiliationNortheast Regional Epilepsy Group, New York, New York, USAen
dc.identifier.affiliationDepartments of Neurology and Psychiatry and Behavioral Sciences, Emory Centre for Ethics, Emory University School of Medicine, Atlanta, Georgia, USAen
dc.identifier.affiliationDepartment of Neurology, University Hospital Bern & University of Bern, Bern, Switzerland-
dc.identifier.affiliationDepartment of Neurology, Radboud University Nijmegen Medical Centre, Donders Institute for Brain, Cognition and Behaviour, Nijmegen, Netherlands-
dc.identifier.affiliationSchool of Health Sciences, The University of Manchester, Manchester, UK-
dc.identifier.affiliationDepartment of Clinical Neurosciences, School of Molecular and Clinical Medicine, Western General Hospital, University of Edinburgh, Edinburgh, UK-
dc.identifier.affiliationInstitute of Psychiatry, Psychology and Neuroscience, King's College London, London, UK-
dc.identifier.affiliationDonald Gordon Medical Centre, University of the Witwatersrand, Johannesburg, South Africa-
dc.identifier.affiliationInstitute of Mental Health, Division of Psychiatry, Faculty of Brain Sciences, University College London, London, United Kingdom-
dc.identifier.affiliationNeuroscience Research Centre, Institute of Molecular and Clinical Sciences, St George's University, London, UK-
dc.identifier.affiliationInstitute of Psychiatry, Psychology and Neuroscience, King's College London, London, UK-
dc.identifier.affiliationUniversity College London Institute of Neurology, National Hospital for Neurology and Neurosurgery, London, UK-
dc.identifier.affiliationInstitute of Psychiatry, Psychology and Neuroscience, King's College London, London, UK-
dc.identifier.affiliationMovement Disorders Clinic and the Edmond J. Safra Program in Parkinson's Disease, University Health Network, Toronto, Ontario, Canada-
dc.identifier.affiliationNeuroscience Research Centre, Institute of Molecular and Clinical Sciences, St George's University, London, UK-
dc.identifier.affiliationTherapy Services, The National Hospital for Neurology and Neurosurgery, London, UK-
dc.identifier.affiliationNeuroscience Research Centre, Institute of Molecular and Clinical Sciences, St George's University, London, UK-
dc.identifier.affiliationDepartments of Neurology and Psychiatry, Therapy Services, Massachusetts General Hospital, Harvard Medical School, Boston, MA, United States-
dc.identifier.affiliationDepartment of Neurology, University Hospital Knappschaftskrankenhaus Bochum, Ruhr University Bochum, Bochum, Germany-
dc.identifier.affiliationAcademic Neurology Unit, University of Sheffield, Royal Hallamshire Hospital, Sheffield, UK-
dc.identifier.affiliationDepartment of Neurology, Medical University of Graz, Graz, Austria-
dc.identifier.affiliationDepartment of Neurology and Center of Clinical Neuroscience, Charles University in Prague, Prague, Czech Republic-
dc.identifier.affiliationInstitute of Psychiatry, Psychology and Neuroscience, King's College London, London, UK-
dc.identifier.affiliationDepartment of Clinical Neurosciences, School of Molecular and Clinical Medicine, Western General Hospital, University of Edinburgh, Edinburgh, UK-
dc.identifier.affiliationDepartment of Neurology, University Medical Center Groningen, University of Groningen, Groningen, Netherlands-
dc.identifier.affiliationDepartment of Neuroscience, Biomedicine, and Movement, University of Verona, Verona, Italy-
dc.identifier.doi10.1136/jnnp-2019-322180-
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dc.identifier.pubmedid32111637-
dc.type.austinJournal Article-
dc.type.austinReview-
local.name.researcherKanaan, Richard A A
item.languageiso639-1en-
item.grantfulltextnone-
item.fulltextNo Fulltext-
item.cerifentitytypePublications-
item.openairetypeJournal Article-
item.openairecristypehttp://purl.org/coar/resource_type/c_18cf-
crisitem.author.deptPsychiatry (University of Melbourne)-
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