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dc.contributor.authorMaharaj, Ashika D-
dc.contributor.authorHolland, Jennifer F-
dc.contributor.authorScarborough, Ri O-
dc.contributor.authorEvans, Sue M-
dc.contributor.authorIoannou, Liane J-
dc.contributor.authorBrown, Wendy-
dc.contributor.authorCroagh, Daniel G-
dc.contributor.authorPilgrim, Charles H C-
dc.contributor.authorKench, James G-
dc.contributor.authorLipton, Lara R-
dc.contributor.authorLeong, Trevor-
dc.contributor.authorMcNeil, John J-
dc.contributor.authorNikfarjam, Mehrdad-
dc.contributor.authorAly, Ahmad-
dc.contributor.authorBurton, Paul R-
dc.contributor.authorCashin, Paul A-
dc.contributor.authorChu, Julie-
dc.contributor.authorDuong, Cuong P-
dc.contributor.authorEvans, Peter-
dc.contributor.authorGoldstein, David-
dc.contributor.authorHaydon, Andrew-
dc.contributor.authorHii, Michael W-
dc.contributor.authorKnowles, Brett P F-
dc.contributor.authorMerrett, Neil D-
dc.contributor.authorMichael, Michael-
dc.contributor.authorNeale, Rachel E-
dc.contributor.authorPhilip, Jennifer-
dc.contributor.authorPorter, Ian W T-
dc.contributor.authorSmith, Marty-
dc.contributor.authorSpillane, John-
dc.contributor.authorTagkalidis, Peter P-
dc.contributor.authorZalcberg, John R-
dc.identifier.citationBMJ Open 2019; 9(9): e031434-
dc.description.abstractThe Upper Gastrointestinal Cancer Registry (UGICR) was developed to monitor and improve the quality of care provided to patients with upper gastrointestinal cancers in Australia. It supports four cancer modules: pancreatic, oesophagogastric, biliary and primary liver cancer. The pancreatic cancer (PC) module was the first module to be implemented, with others being established in a staged approach. Individuals are recruited to the registry if they are aged 18 years or older, have received care for their cancer at a participating public/private hospital or private clinic in Australia and do not opt out of participation. The UGICR is governed by a multidisciplinary steering committee that provides clinical governance and oversees clinical working parties. The role of the working parties is to develop quality indicators based on best practice for each registry module, develop the minimum datasets and provide guidance in analysing and reporting of results. Data are captured from existing data sources (population-based cancer incidence registries, pathology databases and hospital-coded data) and manually from clinical records. Data collectors directly enter information into a secure web-based Research Electronic Data Capture (REDCap) data collection platform. The PC module began with a pilot phase, and subsequently, we used a formal modified Delphi consensus process to establish a core set of quality indicators for PC. The second module developed was the oesophagogastric cancer (OGC) module. Results of the 1 year pilot phases for PC and OGC modules are included in this cohort profile. The UGICR will provide regular reports of risk-adjusted, benchmarked performance on a range of quality indicators that will highlight variations in care and clinical outcomes at a health service level. The registry has also been developed with the view to collect patient-reported outcomes (PROs), which will further add to our understanding of the care of patients with these cancers.-
dc.subjectbiliary cancer-
dc.subjectclinical registry-
dc.subjectgastric cancer-
dc.subjectliver cancer-
dc.subjectoesophageal cancer-
dc.subjectpancreatic cancer-
dc.subjectpopulation health-
dc.subjectquality improvement-
dc.subjectquality of care-
dc.subjectupper gastrointestinal cancers-
dc.titleThe Upper Gastrointestinal Cancer Registry (UGICR): a clinical quality registry to monitor and improve care in upper gastrointestinal cancers.-
dc.typeJournal Article-
dc.identifier.journaltitleBMJ Open-
dc.identifier.affiliationRoyal Prince Alfred Hospital, Camperdown, New South Wales, Australiaen
dc.identifier.affiliationMonash Health, Melbourne, Victoria, Australiaen
dc.identifier.affiliationAlfred Health, Melbourne, Victoria, Australiaen
dc.identifier.affiliationPublic Health and Preventative Medicine, Monash University, Melbourne, Victoria, Australiaen
dc.identifier.affiliationDepartment of Surgery, Monash University, Melbourne, Victoria, Australiaen
dc.identifier.affiliationAustin Health, Heidelberg, Victoria, Australiaen
dc.identifier.affiliationDepartment of Surgery, Austin Health, University of Melbourne, Melbourne, Victoria, Australiaen
dc.identifier.affiliationPublic Health and Preventative Medicine, Monash University, Melbourne, Victoria, Australiaen
dc.identifier.affiliationWestern Health, Melbourne, Victoria, Australiaen
dc.identifier.affiliationAlfred Health, Melbourne, Victoria, Australiaen
dc.identifier.affiliationPeter MacCallum Cancer Centre, Melbourne, Victoria, Australiaen
dc.identifier.affiliationCabrini Health, Malvern, Victoria, Australiaen
dc.identifier.affiliationSt Vincent's Hospital, Melbourne, Victoria, Australiaen
dc.identifier.affiliationPopulation Health Division, QIMR Berghofer Medical Research Institute, Herston, Queensland, Australiaen
dc.identifier.affiliationSchool of Medicine, Western Sydney University, Penrith South, New South Wales, Australiaen
dc.identifier.affiliationRoyal Melbourne Hospital, Melbourne, Victoria, Australiaen
dc.identifier.affiliationNelune Comprehensive Cancer Centre, Prince of Wales, Randwick, New South Wales, Australiaen
dc.identifier.affiliationPeninsula Health, Melbourne, Victoria, Australiaen
dc.type.austinJournal Article-, Ahmad
item.openairetypeJournal Article-
item.fulltextNo Fulltext-
item.openairecristype (University of Melbourne)-
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