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Title: Informing and involving cancer patients in their own care.
Austin Authors: Jefford, Michael;Tattersall, Martin H N
Affiliation: Ludwig Institute for Cancer Research, Austin and Repatriation Medical Centre, Heidelberg, Victoria, Australia
Issue Date: 1-Oct-2002
Publication information: The Lancet. Oncology; 3(10): 629-37
Abstract: Doctors have long feared that disclosure of a cancer diagnosis may harm the patient. However, the vast majority of cancer patients in more developed countries prefer to have as much information as possible, regardless of whether it is good or bad. Moreover, these patients are often dissatisfied with the amount and quality of information they receive. Additionally, many patients are unable to participate to the extent that they wish in decisions about their own care, and doctors frequently fail to recognise or appreciate the role that their patients prefer in decision-making. Various information resources have been developed to meet the needs of patients and their families. This paper discusses the information needs and participation preferences of patients with cancer and the consequences of not meeting these expectations. The paper then reviews the types of information resources that have been developed focusing on their reported effectiveness. The review concludes with suggestions for future research.
Gov't Doc #: 12372725
Journal: The Lancet. Oncology
Type: Journal Article
Subjects: Professional Patient Relationship
Decision Making
Patient Care Planning
Patient Education as Topic
Patient Participation
Physician-Patient Relations
Appears in Collections:Journal articles

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