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dc.contributor.authorLuker, Julie A-
dc.contributor.authorMurray, Carolyn-
dc.contributor.authorLynch, Elizabeth A-
dc.contributor.authorBernhardsson, Susanne-
dc.contributor.authorShannon, Michelle-
dc.contributor.authorBernhardt, Julie-
dc.identifier.citationArchives of Physical Medicine and Rehabilitation 2017; 98(9): 1852-1862.e13-
dc.description.abstractTo report and synthesize the experiences, needs, and preferences of carers of stroke survivors undergoing inpatient rehabilitation. MEDLINE, CINAHL, Embase, PsycINFO, and Web of Science were searched to March 2016. Reference lists of relevant publications were searched. No language restrictions were applied. Eligible qualitative studies reported the experiences of carers of stroke survivors who underwent inpatient rehabilitation. The search yielded 3532 records; 93 full-text publications were assessed for eligibility, and 34 documents (33 studies) were included. Comprehensiveness of reporting was assessed using the Consolidated Criteria for Reporting Qualitative Health Research framework. Data on the characteristics of included studies were independently extracted by 2 authors. Differences in data extraction between authors were resolved through discussion or by a third author. All text in studies' results and discussion sections were extracted for analysis. Extracted texts were analyzed inductively using thematic synthesis. Seven analytical themes were developed that related to the carers' experiences, needs, and preferences: (1) overwhelmed with emotions; (2) recognition as a stakeholder in recovery; (3) desire to be heard and informed; (4) persisting for action and outcomes; (5) being legitimate clients; (6) navigating an alien culture and environment; and (7) managing the transition home. This systematic review provides new insights into the experiences, needs, and preferences of carers of stroke survivors undergoing inpatient rehabilitation. Carers experienced distress as they navigated a foreign culture and environment without adequate communication and processes in place for their inclusion. We recommend deliberate efforts to provide a more inclusive environment that better supports and prepares carers for their new role.-
dc.subjectQualitative research-
dc.titleCarers' Experiences, Needs, and Preferences During Inpatient Stroke Rehabilitation: A Systematic Review of Qualitative Studies.-
dc.typeJournal Article-
dc.identifier.journaltitleArchives of Physical Medicine and Rehabilitation-
dc.identifier.affiliationSansom Institute for Health Research, University of South Australia, Adelaide, SA, Australiaen
dc.identifier.affiliationOccupational Therapy, University of South Australia, Adelaide, SA, Australiaen
dc.identifier.affiliationNational Health and Medical Research Council Centre of Research Excellence Stroke Rehabilitation and Brain Recovery, Heidelberg, Victoria, Australiaen
dc.identifier.affiliationAdelaide Nursing School, University of Adelaide, Adelaide, SA, Australiaen
dc.identifier.affiliationNärhälsan Research and Development Primary Health Care, Region Västra Götaland, Göteborg, Swedenen
dc.identifier.affiliationThe Florey Institute of Neuroscience and Mental Health, Heidelberg, Victoria, Australiaen
dc.type.austinJournal Article-
dc.type.austinResearch Support, Non-U.S. Gov't-
item.fulltextNo Fulltext-
item.openairetypeJournal Article-
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