Please use this identifier to cite or link to this item: https://ahro.austin.org.au/austinjspui/handle/1/16248
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dc.contributor.authorHudson, Peter L-
dc.contributor.authorGirgis, Afaf-
dc.contributor.authorMitchell, Geoffrey K-
dc.contributor.authorPhilip, Jenny-
dc.contributor.authorParker, Deborah-
dc.contributor.authorCurrow, David-
dc.contributor.authorLiew, Danny-
dc.contributor.authorThomas, Kristina-
dc.contributor.authorLe, Brian-
dc.contributor.authorMoran, Juli A-
dc.contributor.authorBrand, Caroline A-
dc.date.accessioned2016-09-13T03:59:51Z-
dc.date.available2016-09-13T03:59:51Z-
dc.date.issued2015-12-10-
dc.identifier.citationBMC Palliative Care 2015; 14: 73en
dc.identifier.urihttps://ahro.austin.org.au/austinjspui/handle/1/16248-
dc.description.abstractBACKGROUND: Palliative care focuses on supporting patients diagnosed with advanced, incurable disease; it is 'family centered', with the patient and their family (the unit of care) being core to all its endeavours. However, approximately 30-50% of carers experience psychological distress which is typically under recognised and consequently not addressed. Family meetings (FM) are recommended as a means whereby health professionals, together with family carers and patients discuss psychosocial issues and plan care; however there is minimal empirical research to determine the net effect of these meetings and the resources required to implement them systematically. The aims of this study were to evaluate: (1) if family carers of hospitalised patients with advanced disease (referred to a specialist palliative care in-patient setting or palliative care consultancy service) who receive a FM report significantly lower psychological distress (primary outcome), fewer unmet needs, increased quality of life and feel more prepared for the caregiving role; (2) if patients who receive the FM experience appropriate quality of end-of-life care, as demonstrated by fewer hospital admissions, fewer emergency department presentations, fewer intensive care unit hours, less chemotherapy treatment (in last 30 days of life), and higher likelihood of death in the place of their choice and access to supportive care services; (3) the optimal time point to deliver FM and; (4) to determine the cost-benefit and resource implications of implementing FM meetings into routine practice. METHODS: Cluster type trial design with two way randomization for aims 1-3 and health economic modeling and qualitative interviews with health for professionals for aim 4. DISCUSSION: The research will determine whether FMs have positive practical and psychological impacts on the family, impacts on health service usage, and financial benefits to the health care sector. This study will also provide clear guidance on appropriate timing in the disease/care trajectory to provide a family meeting. TRIAL REGISTRATION: Australian New Zealand Clinical Trials Registry ACTRN12615000200583.en
dc.subjectPalliative Careen
dc.titleBenefits and resource implications of family meetings for hospitalized palliative care patients: research protocolen
dc.typeJournal Articleen
dc.identifier.journaltitleBMC Palliative Careen
dc.identifier.affiliationAustin Health, Heidelberg, Victoria, Australiaen
dc.identifier.affiliationCentre for Palliative Care St Vincent's Hospital, University of Melbourne, Melbourne, Victoria, Australiaen
dc.identifier.affiliationQueens University, Belfast, UKen
dc.identifier.affiliationCentre for Oncology Education and Research Translation (CONCERT), Ingham Institute for Applied Medical Research, South Western Sydney Clinical School, UNSW Medicine, The University of New South Wales, Sydney, NSW, Australiaen
dc.identifier.affiliationSchool of Medicine, University of Queensland, Queensland, Australiaen
dc.identifier.affiliationCentre for Applied Nursing Research, Ingham Institute for Applied Medical Research, School of Nursing and Midwifery, Western Sydney University, Sydney, NSW, Australiaen
dc.identifier.affiliationDiscipline, Palliative and Supportive Services, Flinders University, Adelaide, South Australia, Australiaen
dc.identifier.affiliationMelbourne EpiCentre, University of Melbourne and Melbourne Health, Melbourne, Victoria, Australiaen
dc.identifier.affiliationPalliative & Supportive Care Melbourne Health & University of Melbourne, Melbourne, victoria, Australiaen
dc.identifier.affiliationPalliative Careen
dc.identifier.affiliationDepartment of Epidemiology and Preventive Medicine, Monash University Melbourne, Melbourne, Australiaen
dc.identifier.pubmedurihttps://pubmed.ncbi.nlm.nih.gov/26654721en
dc.identifier.doi10.1186/s12904-015-0071-6en
dc.type.contentTexten
dc.type.austinJournal Articleen_US
local.name.researcherMoran, Juli A
item.openairecristypehttp://purl.org/coar/resource_type/c_18cf-
item.cerifentitytypePublications-
item.fulltextNo Fulltext-
item.grantfulltextnone-
item.openairetypeJournal Article-
crisitem.author.deptPalliative Care-
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