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|Title:||Patient perceptions of participation in emergency medicine research projects.|
|Authors:||de Tonnerre, Erik J;Smith, Jesse L;Spencer, William S;Date, Patrick A;Taylor, David McD|
|Affiliation:||Northern Sydney Local Health District, NSW Health, Sydney, New South Wales, Australia|
Austin Health, Heidelberg, Victoria, Australia
Alfred Health, Melbourne, Victoria, Australia
Central Gippsland Health, Sale, Victoria, Australia
Department of Emergency Medicine, Austin Health, Heidelberg, Victoria, Australia
Department of Medicine, The University of Melbourne, Melbourne, Victoria, Australia
|Citation:||Emergency medicine Australasia : EMA 2020; online first: 10 February|
|Abstract:||To determine if ED research reflects patient expectations. A cross-sectional ED patient survey. Three hundred and nine (98.1%, 95% confidence interval [CI] 95.7-99.2) of 315 patients believed that ED research was important. Two hundred and twelve (68.4%, 95% CI 62.9-73.5) would welcome involvement, only 26 (8.4%, 95% CI 5.7-12.3) felt pressured to do so. Two hundred and thirty-one (75.7%, 95% CI 70.5-80.4) and 279 (91.5%, 95% CI 87.6-94.3) believed consent was necessary for observational and experimental studies, respectively. One hundred and one (32.4%, 95% CI 27.3-37.9) disagreed with medical records being accessed without consent. Patient expectations are not always consistent with current practice. The expectation of consent prior to record access is worthy of further consideration.|
|Appears in Collections:||Journal articles|
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