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Title: Stroke survivor follow-up in a national registry: Lessons learnt from respondents who completed telephone interviews.
Authors: Barclay-Moss, Karen M;Lannin, Natasha A;Grabsch, Brenda;Kilkenny, Monique F;Cadilhac, Dominique A
Affiliation: Stroke Division, The Florey Institute of Neuroscience and Mental Health, The University of Melbourne, Heidelberg, Victoria, Australia
Stroke & Ageing Research, Department of Medicine, School of Clinical Sciences at Monash Health, Monash University, Clayton, VIC, Australia
Alfred Health, Melbourne, VIC, Australia
School of Allied Health, College of Science, Health and Engineering, La Trobe University, Bundoora, VIC, Australia
Issue Date: 26-Oct-2018
EDate: 2018-10-26
Citation: International journal of stroke : official journal of the International Stroke Society 2018: 1747493018806190
Abstract: The Australian Stroke Clinical Registry (AuSCR) collects patient-reported outcomes at 90-180 days post-stroke. During telephone interviews, stroke survivors or their carers/family members often explain why they did not respond to a previously mailed survey. This feedback is useful to explore respondents' experiences of the follow-up process. Three main reasons for not returning surveys included: health-related time constraints, confusion about survey questions, and stroke denial. Such information is helpful in improving procedures for clinical quality disease registries and researchers using postal questionnaires.
DOI: 10.1177/1747493018806190
ORCID: 0000-0001-9606-7821
PubMed URL: 30362905
Type: Journal Article
Subjects: Follow-up
clinical registry
quality improvement
survey methods
Appears in Collections:Journal articles

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