Please use this identifier to cite or link to this item: http://ahro.austin.org.au/austinjspui/handle/1/17654
Title: National stroke registries for monitoring and improving the quality of hospital care: A systematic review.
Authors: Cadilhac, Dominique A;Kim, Joosup;Lannin, Natasha A;Kapral, Moira K;Schwamm, Lee H;Dennis, Martin S;Norrving, Bo;Meretoja, Atte
Affiliation: Stroke and Ageing Research, School of Clinical Sciences at Monash Health, Monash University, Clayton, Victoria, Australia
The Florey Institute of Neuroscience and Mental Health, Heidelberg, Victoria, Australia
College of Science, Health and Engineering, La Trobe University, Bundoora, Victoria, Australia Alfred Health, Prahran, Australia
Department of Medicine, University of Toronto, Toronto, Canada
Department of Neurology, Stroke Service Division, Massachusetts General Hospital and Harvard Medical School, Boston, MA, USA
Centre for Clinical Brain Sciences, University of Edinburgh, Scotland
Department of Clinical Sciences, Neurology, Lund University, Sweden
Department of Medicine, Royal Melbourne Hospital, University of Melbourne, Parkville, VIC, Australia
Department of Neurology, Helsinki University Central Hospital, Helsinki, Finland
Issue Date: Jan-2016
Citation: International journal of stroke 2016; 11(1): 28-40
Abstract: Routine monitoring of the quality of stroke care is becoming increasingly important since patient outcomes could be improved with better access to proven treatments. It remains unclear how many countries have established a national registry for monitoring stroke care. To describe the current status of national, hospital-based stroke registries that have a focus on monitoring access to evidence-based care and patient outcomes and to summarize the main features of these registries. We undertook a systematic search of the published literature to identify the registries that are considered in their country to represent a national standardized dataset for acute stroke care and outcomes. Our initial keyword search yielded 5002 potential papers, of which we included 316 publications representing 28 national stroke registries from 26 countries. Where reported, data were most commonly collected with a waiver of patient consent (70%). Most registries used web-based systems for data collection (57%) and 25% used data linkage. Few variables were measured consistently among the registries reflecting their different local priorities. Funding, resource requirements, and coverage also varied. This review provides an overview of the current use of national stroke registries, a description of their common features relevant to monitoring stroke care in hospitals. Formal registration and description of registries would facilitate better awareness of efforts in this field.
URI: http://ahro.austin.org.au/austinjspui/handle/1/17654
DOI: 10.1177/1747493015607523
ORCID: 0000-0001-8162-682X
PubMed URL: 26763018
Type: Journal Article
Research Support, Non-U.S. Gov't
Review
Subjects: Stroke
health care
outcome assessment
quality assurance
registries
Appears in Collections:Journal articles

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