Please use this identifier to cite or link to this item: https://ahro.austin.org.au/austinjspui/handle/1/16788
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dc.contributor.authorHannan, Liam M-
dc.contributor.authorWhitehurst, David GT-
dc.contributor.authorBryan, Stirling-
dc.contributor.authorRoad, Jeremy D-
dc.contributor.authorMcDonald, Christine F-
dc.contributor.authorBerlowitz, David J-
dc.contributor.authorHoward, Mark E-
dc.date2017-03-02-
dc.date.accessioned2017-08-10T01:29:02Z-
dc.date.available2017-08-10T01:29:02Z-
dc.date.issued2017-06-
dc.identifier.citationQuality of Life Research 2017; 26(6): 1493-1505en_US
dc.identifier.urihttps://ahro.austin.org.au/austinjspui/handle/1/16788-
dc.description.abstractPURPOSE: To explore the influence of descriptive differences in items evaluating mobility on index scores generated from two generic preference-based health-related quality of life (HRQoL) instruments. METHODS: The study examined cross-sectional data from a postal survey of individuals receiving assisted ventilation in two state/province-wide home mechanical ventilation services, one in British Columbia, Canada and the other in Victoria, Australia. The Assessment of Quality of Life 8-dimension (AQoL-8D) and the EQ-5D-5L were included in the data collection. Graphical illustrations, descriptive statistics, and measures of agreement [intraclass correlation coefficients (ICCs) and Bland-Altman plots] were examined using index scores derived from both instruments. Analyses were performed on the full sample as well as subgroups defined according to respondents' self-reported ability to walk. RESULTS: Of 868 individuals receiving assisted ventilation, 481 (55.4%) completed the questionnaire. Mean index scores were 0.581 (AQoL-8D) and 0.566 (EQ-5D-5L) with 'moderate' agreement demonstrated between the two instruments (ICC = 0.642). One hundred fifty-nine (33.1%) reported level 5 ('I am unable to walk about') on the EQ-5D-5L Mobility item. The walking status of respondents had a marked influence on the comparability of index scores, with a larger mean difference (0.206) and 'slight' agreement (ICC = 0.386) observed when the non-ambulant subgroup was evaluated separately. CONCLUSIONS: This study provides further evidence that between-measure discrepancies between preference-based HRQoL instruments are related in part to the framing of mobility-related items. Longitudinal studies are necessary to determine the responsiveness of preference-based HRQoL instruments in cohorts that include non-ambulant individuals.en_US
dc.titleFraming of mobility items: a source of poor agreement between preference-based health-related quality of life instruments in a population of individuals receiving assisted ventilationen_US
dc.typeJournal Articleen_US
dc.identifier.journaltitleQuality of Life Researchen_US
dc.identifier.affiliationInstitute for Breathing and Sleepen_US
dc.identifier.affiliationRespiratory and Sleep Medicineen_US
dc.identifier.affiliationVictorian Respiratory Support Serviceen_US
dc.identifier.affiliationMedicine, Dentistry, and Health Science, University of Melbourne, Victoria, Australiaen_US
dc.identifier.affiliationFaculty of Health Sciences, Simon Fraser University, Burnaby, BC, Canadaen_US
dc.identifier.affiliationInternational Collaboration on Repair Discoveries (ICORD), Faculty of Medicine, University of British Columbia, Vancouver, BC, Canadaen_US
dc.identifier.affiliationCentre for Clinical Epidemiology and Evaluation, Vancouver Coastal Health Research Institute, Vancouver, BC, Canadaen_US
dc.identifier.affiliationSchool of Population and Public Health, University of British Columbia, Vancouver, BC, Canadaen_US
dc.identifier.affiliationHealth Economics Research Unit, University of Aberdeen, Aberdeen, Scotland, UKen_US
dc.identifier.affiliationDepartment of Medicine, University of British Columbia, Vancouver, BC, Canadaen_US
dc.identifier.affiliationProvincial Respiratory Outreach Program, Vancouver, BC, Canadaen_US
dc.identifier.pubmedurihttps://pubmed.ncbi.nlm.nih.gov/28255744en_US
dc.identifier.doi10.1007/s11136-017-1510-zen_US
dc.type.contentTexten_US
dc.identifier.orcid0000-0003-2543-8722en_US
dc.type.austinJournal Articleen_US
local.name.researcherBerlowitz, David J
item.openairecristypehttp://purl.org/coar/resource_type/c_18cf-
item.cerifentitytypePublications-
item.fulltextNo Fulltext-
item.grantfulltextnone-
item.openairetypeJournal Article-
crisitem.author.deptInstitute for Breathing and Sleep-
crisitem.author.deptInstitute for Breathing and Sleep-
crisitem.author.deptRespiratory and Sleep Medicine-
crisitem.author.deptPhysiotherapy-
crisitem.author.deptInstitute for Breathing and Sleep-
crisitem.author.deptData Analytics Research and Evaluation (DARE) Centre-
crisitem.author.deptInstitute for Breathing and Sleep-
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