Please use this identifier to cite or link to this item: https://ahro.austin.org.au/austinjspui/handle/1/12150
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dc.contributor.authorFernando, Dinusha Ken
dc.contributor.authorMcIntosh, Anne Men
dc.contributor.authorBladin, Peter Fen
dc.contributor.authorWilson, Sarah Jen
dc.date.accessioned2015-05-16T01:48:03Z-
dc.date.available2015-05-16T01:48:03Z-
dc.date.issued2014-03-31en
dc.identifier.citationEpilepsy & Behavior : E&b 2014; 33: 144-51en
dc.identifier.govdoc24681640en
dc.identifier.otherPUBMEDen
dc.identifier.urihttps://ahro.austin.org.au/austinjspui/handle/1/12150en
dc.description.abstractFew studies have investigated the patient experience of unsuccessful medical interventions, particularly in the epilepsy surgery field. The present review aimed to gain insight into the patient experience of seizure recurrence after epilepsy surgery by examining the broader literature dealing with suboptimal results after medical interventions (including epilepsy surgery). To capture the patient experience, the literature search focused on qualitative research of patients who had undergone medically unsuccessful interventions, published in English in scholarly journals. Twenty-two studies were found of patients experiencing a range of suboptimal outcomes, including seizure recurrence, cancer recurrence and progression, unsuccessful joint replacement, unsuccessful infertility treatment, organ transplant rejection, coronary bypass graft surgery, and unsuccessful weight-loss surgery. In order of frequency, the most common patient experiences included the following: altered social dynamics and stigma, unmet expectations, negative emotions, use of coping strategies, hope and optimism, perceived failure of the treating team, psychiatric symptoms, and control issues. There is support in the epilepsy surgery literature that unmet expectations and psychiatric symptoms are key issues for patients with seizure recurrence, while other common patient experiences have been implied but not systematically examined. Several epilepsy surgery specific factors influence patient perceptions of seizure recurrence, including the nature of postoperative seizures, the presence of postoperative complications, and the need for increased postoperative medications. Knowledge of common patient experiences can assist in the delivery of patient follow-up and rehabilitation services tailored to differing outcomes after epilepsy surgery.en
dc.language.isoenen
dc.subject.otherEpilepsy surgeryen
dc.subject.otherPsychological adjustmenten
dc.subject.otherPsychosocial outcomeen
dc.subject.otherQualitative researchen
dc.subject.otherSurgical outcomeen
dc.subject.otherUnsuccessful medical interventionsen
dc.subject.otherAdaptation, Psychologicalen
dc.subject.otherBrain.surgeryen
dc.subject.otherEpilepsy.psychology.surgeryen
dc.subject.otherHumansen
dc.subject.otherPostoperative Perioden
dc.subject.otherTreatment Failureen
dc.titleCommon experiences of patients following suboptimal treatment outcomes: implications for epilepsy surgery.en
dc.typeJournal Articleen
dc.identifier.journaltitleEpilepsy & behavior : E&Ben
dc.identifier.affiliationEpilepsy Research Centre, Department of Medicine, Austin Health, The University of Melbourne, Heidelberg, Victoria, Australiaen
dc.identifier.affiliationMelbourne Brain Centre, Department of Medicine, The Royal Melbourne Hospital, The University of Melbourne, Melbourne, Australiaen
dc.identifier.affiliationComprehensive Epilepsy Program, Austin Health, Heidelberg, Victoria, Australiaen
dc.identifier.affiliationDepartment of Neurology, Austin Health, Heidelberg, Victoria, Australiaen
dc.identifier.affiliationMelbourne School of Psychological Sciences, The University of Melbourne, Parkville 3010, Australiaen
dc.identifier.affiliationDepartment of Neurology, The Royal Melbourne Hospital, Melbourne, Australiaen
dc.identifier.doi10.1016/j.yebeh.2014.02.018en
dc.description.pages144-51en
dc.relation.urlhttps://pubmed.ncbi.nlm.nih.gov/24681640en
dc.type.austinJournal Articleen
local.name.researcherBladin, Peter F
item.openairetypeJournal Article-
item.openairecristypehttp://purl.org/coar/resource_type/c_18cf-
item.grantfulltextnone-
item.fulltextNo Fulltext-
item.cerifentitytypePublications-
item.languageiso639-1en-
crisitem.author.deptEpilepsy Research Centre-
crisitem.author.deptNeurology-
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