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Title: Ethical considerations in choosing a model for population-based cystic fibrosis carrier screening.
Authors: Modra, Lucy J;Massie, R John;Delatycki, Martin B
Austin Health, Heidelberg, Victoria, Australia, Australia
Issue Date: 2-Aug-2010
Citation: Medical Journal of Australia; 193(3): 157-60
Abstract: Cystic fibrosis (CF) carrier testing can be used to inform reproductive decision making, allowing carriers to avoid having a child with CF. A government-funded, population-based CF carrier screening program would allow greater equity of access to this test. The setting in which CF carrier screening is offered significantly affects the extent to which participants make well informed, voluntary decisions to accept or decline testing. Screening offered before pregnancy and in non-clinical environments better promotes participant autonomy than screening offered in the prenatal consultation.
Internal ID Number: 20678044
Type: Journal Article
Subjects: Choice Behavior
Cystic Fibrosis.genetics.prevention & control
Ethics, Medical
Genetic Counseling
Genetic Testing
Heterozygote Detection.methods
Models, Theoretical
Prenatal Diagnosis
Appears in Collections:Journal articles

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