Please use this identifier to cite or link to this item: https://ahro.austin.org.au/austinjspui/handle/1/10435
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dc.contributor.authorStreet, Annette F-
dc.contributor.authorSwift, Kathleen-
dc.contributor.authorAnnells, Merilyn-
dc.contributor.authorWoodruff, Roger-
dc.contributor.authorGliddon, Terry-
dc.contributor.authorOakley, Anne-
dc.contributor.authorOttman, Goetz-
dc.date.accessioned2015-05-15T23:52:59Z
dc.date.available2015-05-15T23:52:59Z
dc.date.issued2007-09-14-
dc.identifier.citationBmc Medical Informatics and Decision Making 2007; 7(): 26en
dc.identifier.otherPUBMEDen
dc.identifier.urihttps://ahro.austin.org.au/austinjspui/handle/1/10435en
dc.description.abstractGeneral Practitioners and community nurses rely on easily accessible, evidence-based online information to guide practice. To date, the methods that underpin the scoping of user-identified online information needs in palliative care have remained under-explored. This paper describes the benefits and challenges of a collaborative approach involving users and experts that informed the first stage of the development of a palliative care website 1.The action research-inspired methodology included a panel assessment of an existing palliative care website based in Victoria, Australia; a pre-development survey (n = 197) scoping potential audiences and palliative care information needs; working parties conducting a needs analysis about necessary information content for a redeveloped website targeting health professionals and caregivers/patients; an iterative evaluation process involving users and experts; as well as a final evaluation survey (n = 166).Involving users in the identification of content and links for a palliative care website is time-consuming and requires initial resources, strong networking skills and commitment. However, user participation provided crucial information that led to the widened the scope of the website audience and guided the development and testing of the website. The needs analysis underpinning the project suggests that palliative care peak bodies need to address three distinct audiences (clinicians, allied health professionals as well as patients and their caregivers).Web developers should pay close attention to the content, language, and accessibility needs of these groups. Given the substantial cost associated with the maintenance of authoritative health information sites, the paper proposes a more collaborative development in which users can be engaged in the definition of content to ensure relevance and responsiveness, and to eliminate unnecessary detail. Access to volunteer networks forms an integral part of such an approach.en
dc.language.isoenen
dc.subject.otherCommunity Health Nursing.educationen
dc.subject.otherCooperative Behavioren
dc.subject.otherFamily Practice.educationen
dc.subject.otherHealth Services Researchen
dc.subject.otherHumansen
dc.subject.otherInformation Services.standardsen
dc.subject.otherInterdisciplinary Communicationen
dc.subject.otherInternet.standardsen
dc.subject.otherMedical Informaticsen
dc.subject.otherNeeds Assessmenten
dc.subject.otherPalliative Careen
dc.subject.otherPatient Education as Topic.standardsen
dc.subject.otherVictoriaen
dc.titleDeveloping a web-based information resource for palliative care: an action-research inspired approach.en
dc.typeJournal Articleen
dc.identifier.journaltitleBMC medical informatics and decision makingen
dc.identifier.affiliationClinical School of Nursing, La Trobe University/Austin Health, Lv 4 Austin Tower, Heidelberg VIC 3084, Australiaen
dc.identifier.doi10.1186/1472-6947-7-26en
dc.description.pages26en
dc.relation.urlhttps://pubmed.ncbi.nlm.nih.gov/17854509en
dc.type.contentTexten
dc.type.austinJournal Articleen
item.openairetypeJournal Article-
item.openairecristypehttp://purl.org/coar/resource_type/c_18cf-
item.grantfulltextopen-
item.fulltextWith Fulltext-
item.cerifentitytypePublications-
item.languageiso639-1en-
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